Thanks, sushee.

It really means a lot to me that someone with your wealth of experience is so helpful to those of us just starting out. Any tips on how to convince nurses that something really isn't right, and you're not just a fruit loop who freaks out over little things? Sometimes the attitude of the nurses when you just know something isn't right is that you are worrying over nothing... I've really forgotten how to argue with doctors as both my GP and my rheumy (the two medical professionals I've had a lot to do with over the last few years) are always happy to trust me that I know something isn't right, even if their tests say nothing is wrong. I guess I need to train the clinic nurses now, too.

I've googled and had a look at that book - it does look good, and very useful. Unfortunately, I can't get the link to buy it to actually work!

Kim, here's to not letting the specialists and nurses push us around any more!

BW