thread: Results are in...I have antiphospholipid syndrome

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  1. #1
    Registered User

    Feb 2009
    Brisbane
    208

    Hi Emma
    I've been following your story, and I just wanted to let you know that I'm thinking of you and your journey. At least you know now - and that it can be treated is wonderful news.
    Jen

  2. #2
    Registered User

    Dec 2007
    1,039

    Hey Em
    I am glad you have some answers. At least they can help you when you fall pregnant again. I think Rara may have been on the clexane too.... Take care and big
    Rach xx

  3. #3
    Registered User

    Mar 2008
    mid north coast, nsw
    1,644

    Thanks so much everyone

  4. #4
    Registered User

    Mar 2007
    outer South East Melbourne
    2,881

    Oh no Possums...not exactly good news. It's good to get a diagnosis but one like this will bring you so many worries the next time you get pregnant. I've always had the theory though, that if they know what's wrong they can treat it & therefore you have a much higher chance of a successful pregnancy than before such a diagnosis.

  5. #5
    Registered User

    Mar 2008
    mid north coast, nsw
    1,644

    satya- your comment sums up how I feel really...glad there is something we know about which has treatment, which is better than not knowing...but taking a step back, really worried and a bit upset I have something like this at all...and knowing it will be hard to relax in pregnancy (hard for me anyway! lol)

  6. #6
    Registered User

    Jan 2007
    Central Coast NSW
    135

    Hey possums - what a journey you have been on already - i was asking questions here just the other day about this syndrome, and am thinking of having blood tests done - more for peace of mind before i go ahead and transfer my frozen emby. I have only had one IVF cycle, and had a beautiful 5day blasty transferred, but the result was negative.

    My thoughts are with you - wishing you strength to take the next step on your ttc story *hugs* x

  7. #7
    Registered User

    Oct 2007
    Vic
    617

    Possums ,

    I remember our first OB appointment after our BFP and he outlined everything that could go wrong with the preg because of the APLS - and it scared me. But then I also remembered the good stories that I have read here and in other places and realised that it did not have to be what happened and that a healthy outcome was a very strong possibility. Yep there will be some hiccups along the way, but you will get your little baby and it will be ok. Glad that you found the link to the others on BB with APLS! I totally understand your feelings of 'why me' - yep it is good to know what is going wrong but boy it still sucks and makes you feel sad!

    Pls PM whenever you need to...also ask your Dr about heparin injections vs clexane - they both do the same thing but have slightly different side effects...some drs like one over the other. I've stayed on heparin because it is 1. reversable (if you are in an accident or alike and are bleeding they can give you another medication to reverse short term the blood thining effects of the drug) 2.the injections dont hurt as much (but you have two a day instead of one with clexane)...I know that there are advantages with clexane as well, so just make sure you talk about it with your dr and are comfortable with your choice. Also - get the script in early - before you need the drug...it can be hard to get and chemist need to do a special order, so allow 1 week...also get the biggest sharps container you can find...cause you will fill it...no good are the little IVF ones


    I wish that you did not have APLS but now that you have been diagnosed, I wish that it leads you to your little one.

    FG

  8. #8
    Registered User

    Mar 2008
    mid north coast, nsw
    1,644

    FG- thanks...I knew you would understand the way I feel, and I am encouraged by you and your progress
    I have to see a haematologist next to do more tests and check out a clotting result which was a bit abnormal, given my other results. A lot of what the FS was flying over our heads by the end to be honest, but I know that's my next step.
    And thanks for the tip on the script...I will get it filled out, because while we are trying naturally, I want to be ready should another miracle BFP come our way.
    I was also wondering about the differences between heparin and clexane.