thread: Results are in...I have antiphospholipid syndrome

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  1. #1

    Oct 2008
    2,880

    Hey Emma,

    It's fab news that you have an answer to what's been going on hey? It all sounds really positive and when you fall pregnant again (which will be soon) they know what to do for it to stick! YAY!

    Big hugs
    SX

  2. #2
    Registered User

    Sep 2008
    1,350

    Possums; I just asked after you in the TWW, then I noticed this thread. Good luck with your next appointments, and I am glad they have an answer at least, to your journey so far. Your journey from here on in, is a new chapter with some medications that will hopefully provide all the solutions you need .. x

  3. #3
    Registered User

    Mar 2009
    N.S.W
    1,197

    I am glad that you have a reason for your sad losses and it can be treated. I'm so sorry for your losses. I hope you get your baby really soon

  4. #4
    Registered User

    Mar 2008
    mid north coast, nsw
    1,644

    thanks everyone, you are all a great help and your support really does help.

    I am coming to terms with it all more now (and we have a heap more questions for our FS!)

    but first things first...next step, falling pregnant!

  5. #5
    Registered User

    Mar 2009
    N.S.W
    1,197

    I hope and pray it happens really quickly for you.

  6. #6
    Registered User

    Oct 2007
    Vic
    617

    Possums,
    I know that your head will be swimming at the moment but just want to put your mind at rest on one issue - level of care. My FS stressed me out about booking into an OB by week 8 after our BFP - really hard up here as options are limited as well - and I stressed big time as it was hard (ie I was in tears because I could not get into the one I wanted!). In all honesty, what they really want is for you that early is to have regular scans to monitor baby's progress - slow growth is one of the potential affects of APLS on the growing one. So as long as you can get regular scans, then I am sure that you will be fine under GP / public health system. My OB has not really done anything else - especially this early on and I think that any good care team will look after you and bubs really well.

    As for questions you wished you asked your FS - give them a call - or ring their reception and ask for them to call you when they can- I dont see why you have to wait for answers! Will all pay good money for their services!

    Shared your story with DH today on a long drive, and we are both wishing you well!

    FG

  7. #7
    Registered User

    Mar 2008
    mid north coast, nsw
    1,644

    Thanks so much FG...i feel like you are holding my hand in this, and it is comforting.

    How it works here in terms of care...you can see a private Ob until 12 weeks (which is what I have done with the past pregnancies) and then they refer you to the clinic at the hospital, where normally you are seen by midwives. I think if a pregnancy is high risk, you get seen by a doctor at the clinic instead of the midwives, and maybe see them more often.
    So I guess I am comfortable with the first trimester care, I was worried about after that, when I would prefer to keep seeing the same Ob. But on reflection, i am sure they are a good team at the hospital...and I am fortunate that my IVF nurse (and most regular point of contact, given that the FS is 3 hours away) is a midwife at the hospital. She is also a wonderful caring person, who has really gone above and beyond for me in the past...and I know she will take an active role in my care, at least in the first 12 weeks.

    I too told my DH of your story.

    You know the whole "why me, why something else on top of everything else?" feeling? i still have that quite strongly, even though I know I just have to pick myself up and get on with things! Can you relate to that too?