Hi everyone

I'm a new member, I've just registered after finding this website as I was googling about anencephaly support here in Australian.

My name is Lea, I gave birth to my twins in June last year, Ben was diagnosed with Anencephaly at our first ultrasound at 13 weeks. He is survived by his gorgeous twin sister Nara, they were born at 34 weeks gestation in Brisbane.

I found it very hard to find support in relation to anencephaly when Ben was diagnosed, I have since created an online support group for Australians touched by the condition, if anyone would like any information about it please feel free to contact me and I'll happily tell you more.

Already I see one friendly face that I have encountered in my internet travels (I won't name names, I hope she recognises me as I've been wondering how she was *waves*).

I'm currently expecting a rainbow baby (singleton this time) in February, I look forward to getting to know you ladies in time and am sorry for your losses.

Lea xxxxx