My Son was born at 25+1 weeks. Yes the journey can be described as a rollercoaster. One step forwards, two steps back. We spent 106 days in hospital and on oxygen for 100 of those 106 days.
The first week was uneventful. Weeks 2-8 were the hardest of my life. It wasn't until he was 3 weeks old that we had our first cuddles then, not for another week after that. He was 49 days old before Hubby got his first cuddles.
The Drs will always give you the worst case scenario. I still can't believe that he made it through....collapsed lungs, intubated 3 times, sepsis, late onset GSB (twice) the list goes on. With all he went through he is now a happy & healthy 4.5yr old. He is still a featherweight at 13kgs and his development has been a little behind but we are luck to have no ongoing heath issues.
Take everything an hour at a time, you will amazed how quickly things can change. Keep a diary, write down everything. Spend as much time as you can with your little and if you are, express, express, express. Just remember...you are your child's advocate! If you feel that something is not quite right, let you voice be heard!
Sending healing, strength and growing vibes.
Please PM me if you would like more specifics.
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