Little Jake is still with us. But the doctors are showing concern as scans are showing his brain has slowed down in growth. They don't know why and I can not find any information on this or anyone who has been through this. The second doctor has told me he most likely has a disability but she doesn't know to what extent. The first doctor is recommending we turn off as he will have no quality of life. If he can stay on CPAP then he has a chance. His on day 6 but to me he looks like he is starting to struggle. I'm scared if he goes back on ventilator I don't think he will get off and we will end up losing him.
I'm scared