cherise
I can empathise with you to a certain extent, and you are right - the longer it is, the harder it gets. Just remember 2 steps forward one step back.
My twins were born at 31 weeks . My son had 10% chance of survival and my daughter 20%. At first it was minute by minute, then hour by hour and then day by day. My son needed ops as well for bladder, etc and they thought he had NEC as well. He ended up with an infection in the bloodstream.
They were in hospital for 33 long days and came home at 36 weeks gestation. Today they are fit, healthy stubborn 3 year olds. My son was 1100gms and 25 cm long at birth, and now weighs 26kg and towers over his peers.
Our premmies battle does affect them when they are older. it makes them more determined, and driven - after all they have to fight for every breath.
Make sure you talk to other mums who are going through a similar thing - it helps so much. your MHC nurse should be able to help, or the SCN staff.

Take care and my thoughts are with you
odette
mum to ariel and immogen -5/12/2002 -twins