You can do this, you are doing a great job so far. Be strong and remember that YOU are her mum and YOU are also her advocate. Trust YOUR instinct, it's got you this far x
Yes, this ^^.. I have a note pinned next to Jett's cot. Doesn't always work, but eventually they get the drift.. They didn't even ask me to leave for Drs rounds today because Jett was having his tube re taped (again ) and they know I stay for that no matter what.

Jett had a staph infection too. He was on 3 AB's for 3wks and has done well off them. I hope Amelia is better soon. yay for cuddles, I had one earlier too..

Technically they need your consent for procedures that aren't life saving. The fact that Amelia is in hospital basically gives them implied consent.. You can say to them that you do not give consent to do procedures without you there.

Awful Amelia's IV tissued.. I always cried every time that happened to Jett. IV's were the one thing I didn't stay for, but i left EBM for them to use.. Now I stay for IV's too. I'm so glad Jett's little veins have recovered a bit.. He was getting them replaced every couple of days.. The one he has now has lasted a week!