How come Maxx had a stoma bag RB?
He got NEC at a week old and his bowel perforated, it was quite a scary time. We thought we were going to loss him.
They had to do the surgery to insert the stoma in the incubator as he was to unstable to move and put under a general.
We were fortunate that he recovered reasonably quickly and after a couple of weeks his body popped out the bag and created it's own fistula and slowly healed with out to many problems.
Our situation was not as bad as yours with Jett but in a small way I can understand some of what your are going through.