Well seems for the moment we are expressing and feeding EBM via the ng tube 6 feeds a day and via a bottle 2 feeds a day. I'm a little confused about when she gets to demand feed, I don't think that will happen for aaaages because she would just keep sleeping.

Her cannula tissued today, so they removed it, but her bsl's were stable so she doesn't need it anymore . Wahoo. Can't wait til I have a tube free baby.
Woohoo for stable BSL!!

I was told by the drs when DS2 was in NICU/SCBU sleep=strength. Very normal for babies under 36 weeks to sleep constantly.

You are doing a great job Maruscke!


Some of the resources that helped me when in NICU and SCBU were:
Preterm Infants Parents Association (gave me info on what to expect from each gestation)
also 'Miracle Babies' foundation often have support groups and info in hospitals.