Thank you all for your hugs, they were much needed. I'm just feeling so bloody helpless right now, its so deeply frustrating. And to see her unwell and so so flat is just terribly hard. Its always hard when your kids get sick, but such a tiny little girl who has been through so much already doesn't need to be going through all this again. She's barely moving, just sleeping away and hardly manages to wiggle around at all. When she's well she's normally very active & responsive. She'll open her eyes every so often, but just doze back off again. And she's not really tolerating being handled very much either, wincing and crying when the nurses go in to do anything. If she's left alone she doesn't seem to be in too much discomfort though which is somewhat positive I guess. Her poor little tummy is so round & tight.
She was stable enough overnight and things haven't got significantly worse which is reassuring. She's more bradycardic than she normally is (dropping her heart rate suddenly) but she manages to self-correct most of the time and its normal for them to do it when they're unwell. And they haven't ventilated her again yet which I am surprised about, I think they're just waiting to see how she copes for another day or two, and respiratory wise she isn't quite as compromised this time so I'm hoping so much that tube doesn't go back in. The treatment is much the same as last time - antibiotics, rest her from feeds for a good while and just see how things respond. They're xraying her tummy regularly to watch for any damage and the surgeon is popping back to see her just in case we need to go down that road. I think if she keeps having episodes like this we'll have no choice but to go in and have a look.
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