A close friend of mine has just had twins at 35 weeks one of whom had IUGR and heart problems. they knew they were vey bad from 21 weeks pg but couldn't really tell until birth. She was born at 1.3kg and 32cm long but is a little fighter and is doing well in hospital. Her heart problems aren't as severe as they thought and despite being too small to operate on yet she is doing really well. Its been a tough 2 weeks and there has been some difficult times but things are currently looking up.
My friend found that "Heart Kids" were brilliant support.