My SIL has this. She found out during pregnancy because she got a clot in her leg (during a long distance flight). She was put on clexane and went on to have a healthy normal baby.
Char-leigh's Mum - no I haven't had a clot before. I didn't know I had FVL until a series of tests were done as part of preparation for IVF. So I didn't find out until I was around 30, and had been on the pill for ~9 years, taken several long-haul flights without compression stockings, and also had saline injections to treat varicose veins in my legs (my haematologist flipped out when I told him I'd had that done!). So I guess lots of 'high risk' activities but fortunately I didn't get a clot.
While it may be difficult for Dr's to say if FVL caused the loss of Char-leigh, at least now you can get the additional medical treatment and monitoring needed if you get pregnant again. I wish you all the best
Hi Kelly, I am very sorry to hear of the loss of your daughter.
I had several clots on my lungs last year and was diagnosed with Prothrombin Gene Mutation (heterozygous) which sounds similar to Factor V Lieden. I had been on the pill for many years and have done lots of travelling, which are both risk factors for clots as well.
I just finished my warfarin (blood thinners) and have an appt with a haematologist next month and I will ask about where to go from here with regards to birth control, TTC, pregnancy and birth.
I wish you all the best for the future in going forward now that you have this new information.
Thanx everyone its good to not feel alone on this.
Musiclover it would be great to hear what they say to you it would be great if maybe you feel like sharing it with us.
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