I know! Sorry ladies. Fantastic that he will see you so soon - you go girl! Can't wait to hear the update. Do you mind me asking what state you're from? I ask because I'm always on the lookout for an OB that knows about IC.
Can I have one more vent today please! I just called the clinic to ask if I could go in tomorrow for a preg BT as they said if I didn't get AF 10 days after my 21 day P4 test that I should go in. Well, today is 10 days after but she said "oh no, it's way too early to test now, wait a few more days at least". Does this make sense? Have left a message for my FS to clarify as he said "if you don't get your period on day 28 you are pregnant. There is no such thing as a late period on Clomid". I want to scream!
For someone who was scared to join this thread I sure have alot talking to do don't I???
wow you girls -busy busy! i am tired just reading it all!! lol!
dd0207 - i am so sorry AF arrived!
hgirs - i am really happy about your apppointment on thurs! Its always amazing how they manage to get these miracle appointments is'nt it? either way -glad you got one!
as for me, got a letter from my professor at monash that was addressed to my OB (and a copy sent to me for reference) it basically said everything that i already know -no success rate can be given although he believes a have a small risk and wants me on asprin now and heparin possibly upon BFP. I spoke about it with my mum and she said that it was up to us to try again and she knows and understands i wanted 3 earth babies but to weigh everything up as she said it was heartbreaking as a parent to be useless with something like that and lose a grandchild in the process. Then she got teary. I will be forever grateful for my mum being one of few people away from this site to acknowledge our lost babies AS babies. That is the short version of the letter and convo, i wish i could scan it somehow but my printer is'nt working...
have a great day guys!
xx
I've been doing a bunch of research around my own medical situation and recent loss and came upon some info re: aspirin and heparin but nothing in depth yet. Can I ask, why is your dr putting you on those? (I'm trying to gather further information so that I can ask my dr informed questions about approaches, etc.)
Also, is this person your dr (you say professor)? Has your GP agreed - as I understand some fertility specialists aren't that supportive of this approach.
I thought it was about time that I introduced myself, I have been 'lurking' for a few weeks. I lost my little girl Jasmine on the 29th October (4-weeks ago), I was 19 weeks. Basically my husband & I found out at 12-weeks that something wasn't right due to a high NT result. We eventually found out (via a CVS) that she had moscasism, which means there was 'extra' DNA in her cells (70%), this was confirmed by an amnio at 16-weeks. The docs also detected a major heart problem, which was monitored and then confirmed by a cardiologist that there was only one valve in her heart (should be 2). By then there were other signs, an obstructed bowel, fluid increasing around the brain and the heart. She was also about 2-weeks behind in size. They couldn't say that these physcial signs were related to the DNA issue, but it was becoming likely. After 7-weeks of tests & checks to confirm everything I was given two choices, continue the pregnancy knowing that she would die at birth or shortly after (or I could miscarry) or terminate the pregnancy. As you can imagine, this was an awful decision. We didn't want to risk her suffering at birth and felt it was the kindest of the two terrible options to let her go while she was underdeveloped.
It has been hard knowing that I 'played a role' in her passing. I think it must be one of the cruelest things in life that a mother has to decide to do, she was very much loved & wanted.
Jasmine will never be replaced, but DH & I are thinking of TTC in the new year as we dearly want to start a family.
There's my story. I know it is different to how most of you lost your precious babies, I hope it's ok for me to join your thread and share the journey.
Berry - I am so sorry you had to go through such a horrible experience and make such a difficult - and totally understandable - decision. I hope 2009 is the start to a wonderful year for you and your DH.
Oops, I haven't posted for a while! I'm turning into a lurker.
dd0207: the story of how your OB handled himself after your loss really made me angry. The clinics here have often been irritated with me because I ring repeatedly and insist on knowing exactly what tests they've performed on me and exactly what all the results are -- shouldn't be a weird thing to ask for and shouldn't be hard to answer, either, but it's just not how they normally do things so, believe it or not, it can sometimes take me days to nag an answer out of them. I knew that they tested me for infection after I miscarried in the ER, but that was one of the many answers it took me weeks to weasel out of them. They said of course "If you'd had an infection we would have told you, so when you don't get an answer you can assume things are fine." They say the same whenever they check my thyroid levels and don't call back. But your story is EXACTLY why I nag -- I most certainly do not trust them enough to just figure no news is good news! I very much hope you have an OB now that is more thorough, because this is serious business! I was sorry to hear that your AF arrived. Sorry if I forget, but have your cycles been OK since the infection or are they giving you trouble?
Happy to hear about Helen's good scan!
Rozzie, how are the kicks going? Mine are still pretty irregular -- some days Kebab won't let me be, and some days I get nothing. The midwife assures me that this is still ok. I hope yours continues to kick lots so that you can have the reassurance that you need, but I just thought I'd let you know that she thought periods of inactivity were still normal. It's frightening to me though because, unlike before week 20, fast action can actually save our bubbas now depending on what might go wrong. That winds me up quite a lot, wondering where the line goes between okay and not okay.
Katie -- so glad to hear that Anna is sort of relaxing into her new world. Being born certainly can't be that easy! I hope your drama queen doesn't take too much out of you!
Lan -- I don't have any scans on the horizon. I might have one week 28, as I'm supposed to make a new appointment with the high risk OB then, but otherwise I've had the two "normal" scans and now it'll just be midwife appointments with SF measurements and doppler stuff as long as things keep going so well. Knock on wood!
Jo -- here's a to keep you strong in the coming weeks. It was nice to hear that your mom and dad had Jack's birth date on their calendar -- it must mean a lot that they've made an effort to remember the date themselves. I hope your battle with the head lice is swift and decisive!
Laney -- hang in there as best you can. Is your scan next Thursday, or what day is it next week? Have you made a deal with your doc or midwife to be able to come in and check if you're scared? I think you need that in order to split up the long wait between scans and appointments.
Fleeting hellos to Paula and Sue -- sorry I'm sometimes not very good at personals. My head feels like it's full of mud lately.
Berry -- as usual, we welcome you here even though we wish you didn't have a reason to be here. I'm so sorry you had to lose your baby, and especially in the way that you did. You did what was best for your little girl, but I know that it must hurt enormously. Of course Jasmine can't be replaced, but I think it's great that you want to start trying again in the new year, and I'm happy that you've joined us.
Now we're starting to get a good crop of TTC girls in here! Let's see, Lan, Jo, Paula, Diane, buliej, and now Berry. We'll have to make complicated charts and graphs and calendars. Time to break out the baby dust!
hey girls!
buleij -i wrote you such a long post last night and it would'nt let me post it!!! So second time her goes - i was sent to Monash by my OB to get another opinion as with madisons ultrasounds some of the girls in here may remember there were some quite serious mix ups which turned out to be not true. When i went there for the ultrasound it was there i found out she had died at 22 weeks. So when i saw the Ob doc there she asked ifthey could take over her autopsy as they are a research hospital and are one of only 3 hospitals in VIc that have the experience to do a really extensive autopsy as on babies this young they are specialists in the area and she did'nt want to leave any stones unturned after what had happened to jack. So their testing on me, madison and the placenta (i got to go back tothe same hospital i had my other 3 kids in for comfort reasons and they were given strict written and verbal instructions of how to take a skin cell sample and retain the placenta in perfect condition for testing) came back with nothing at all. the only thing they could see was that she was only half her birth weight despite being the correct length for her age. i saw an Ob at monash for the tests results and because he was at such a loss as to why i have had 2 healthy kids and then 2 mid term losses he referred me to the director of Obsetrics in the hospital who is professor wallace. He has a huge history in Ob'ing and researching preg loss, esp late loss in particular. So essentially he was almost as high up the medical OB food chain in VIC as i could go. He thinks eventhough no clotting signs have shown up in me, madison or the placenta that there is something they have'nt discovered yet to test for that has led to her not being able to get the nutrients she needed resulting in her lack of body weight in a 2 weeks growth period. (every ultrasound up to my 20 week was normal) So he has recommended upon ttc that i start taking asprin at a 150dosage daily to thin my blood flow until my AF arrives, when it does i have to stop until it is over and then resume taking it. if there is a BFP then i continue taking it. Heparin has been recommended as a back up thinner but he takes that decision quite seriously and said it would have to be made at my 6 week ultrasound. I would take heparin until approx 28-30 weeks. he has offered to take me under his wing () which eventhough he does'nt come with a happy outcome i feel good in knowing he is basically top of his field and would be getting at least the best advice. My Ob is fine with shared care as he really took madisons passing quite hard and would want only the best outcome. (he has been my Ob for 7 years) Hope my history and now situation helps you. i have googled like crazy too and asprin and heparin are still quite a do we, don't we treatment. Are you going to be seeing anyone soon?
tildy -HELLO!!! Glad to hear all is still going really well for you! And i agree with the nagging -its a must, what is'nt important to them can me the world to us! i wish the medical profession would be a little more sensitive to that.
berry - welcome! i hope you find us all a huge support for the new year! i am really sorry to read your story. i can't imagine how hard it must have been to make that decision, but you were doing what all mums do for their kids, looking after her!
gotta go girls! My essay to buleij took ages!! sorry!
xx jo
Thanks Jo for sharing your story - I'm so sorry you had to go through all that.
Since my question to you, I learned that my embryo had a chromosomal abnormality which caused the loss. So we have decisions to make about next steps in terms of what kind of tests to do and when to do them. We have my appointment with my FS next week and if I can't speak to her before, will ask them then - I actually typed them all out - quite a lot of questions I have! In the meantime, still waiting for my first AF post d&c which should arrive on 9 Dec-ish at the earliest.
Hi Berry, sorry you have had to find yourself here but I'm glad you joined us. I'm only a newbie here but already have had amazing, immeasurable support from these beautiful ladies. I am so very sorry for the loss of your precious little girl. What a difficult decision to make but trust that you made the right one for Jasmine. Sending you big big hugs and alot of strength to get through this time. We are all here for you whenever you need to talk and look forward to sharing the TTC journey with you.
Hi Tildy, I can't believe these clinics and, like you said, we have to NAG to get answers about OUR own health! Particularly with something as important as our future fertility! God how mad it makes me too. I'm now an avid believer that all medics involved in the fertility area should read these forums as part of their curriculum. At least then they may truly understand how much suffering and hardship goes on with so many women when they don't treat us well, take us seriously or pass us off as neurotic. I shouldn't generalise as there are many wonderful nurses and OBs out there I'm sure but I'm yet to come across one with my experience. I just think there would be great benefit in them seeing how common IC is for example. My old OB said it was a very uncommon thing! Go figure?
My cycles are TOTALLY OFF THE PLANET since my loss. I was very regular before and could pinpoint O to the tee. That?s why I am now seeing a FS to try and get my body back to normal and try to speed things along a little.
I spoke to him last night actually and he wants to try FSH injections along with IUI this cycle as I think the Clomid is not suitable for me. I had no CM whatsoever, very very strong cramping, bad headaches and DH will probably put me into a mental asylum from the absolute feral mood swings I had! Anyone of you girls done this process and can offer info?
Helen, thinking of you today and can?t wait to hear how your appt went.
Jo, so great to hear you?re getting the best care. Sounds like they are on an absolute mission to ensure all goes well for you next time. Big hugs to you incase I don?t speak to you before Sunday. Will be thinking of you and hope you get through the day ok.
Buliej, hope AF arrives for you soon and good luck at your FS appt.
Berry, Your story is heart breaking. I am so sorry that you and your DH had to go through that.
Tildy, I have no idea how you can find the strength to wait until 28 weeks for an ultrasound. I am going to demand one every week after 24 weeks. This bub will have a chance at that point. If there is a problem I want to know about it right away. I will be a mess if I don't.
As for me I have had a pretty hard week and it isn't even half over yet. I had bleeding on Monday and Tuesday. I saw my doctor but the ultrasound tech is on vacation and she is the only one that can use the machine . I had an ultrasound schedules for today. Ten minutes before I walked out the door I got a call telling me there was a mix up and my appt. was canceled. They can't get me in until Friday now due to Thanksgiving. I know the bub has a heartbeat and even if there is a problem they can't do anything about it. I just want to know. The not knowing kills me. I guess I will have an ultrasound this Friday and next. I am really starting to get mad about all of the medical mix ups that I have to stress about.
Hi Laney, sorry to hear about the bleeding. I'm that all is well, which I'm sure it is. It must be so frustrating to be getting the run around with your appointments. Keep calling and nagging them if you're really worried to see if they can bring it forward?
Hi Berry, I'm very sorry for your loss but Jo is right, you did what any mother would do for her child - look after her the best way you can. I hope your TTC journey is short and you'll have a baby to hold soon.
Medical terminology doesn't compute in my head but Diana, I'm glad you've got Helen to answer your questions :-)
I'm gagging to see pictures of Anna. I imagine a fat-cheeked baby because late babies are always plump. I love plump babies with their little fat rolls!!!
Laney... unbelievable that you've had bleeding! Enough already! I would be climbing walls if I were you but at least there is a h/b. Tildy had lots of bleeding but you can see that she is going strong.
Rozzie, where are you? Thinking of you.
Jo, I hope they know what they're doing with all those aspirins and heparins. I want us to get pregnant together and have our babies at the same time. Although I ceased TTC-ing this week because I had a sore tummy, probably from stress. The girls in my team are sh*tting me to tears. Hisssssssss!
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I was sorry to hear that your AF arrived. Sorry if I forget, but have your cycles been OK since the infection or are they giving you trouble?
to keep you strong in the coming weeks. It was nice to hear that your mom and dad had Jack's birth date on their calendar -- it must mean a lot that they've made an effort to remember the date themselves. I hope your battle with the head lice is swift and decisive!
So second time her goes - i was sent to Monash by my OB to get another opinion as with madisons ultrasounds some of the girls in here may remember there were some quite serious mix ups which turned out to be not true. When i went there for the ultrasound it was there i found out she had died at 22 weeks. So when i saw the Ob doc there she asked ifthey could take over her autopsy as they are a research hospital and are one of only 3 hospitals in VIc that have the experience to do a really extensive autopsy as on babies this young they are specialists in the area and she did'nt want to leave any stones unturned after what had happened to jack. So their testing on me, madison and the placenta (i got to go back tothe same hospital i had my other 3 kids in for comfort reasons and they were given strict written and verbal instructions of how to take a skin cell sample and retain the placenta in perfect condition for testing) came back with nothing at all. the only thing they could see was that she was only half her birth weight despite being the correct length for her age. i saw an Ob at monash for the tests results and because he was at such a loss as to why i have had 2 healthy kids and then 2 mid term losses he referred me to the director of Obsetrics in the hospital who is professor wallace. He has a huge history in Ob'ing and researching preg loss, esp late loss in particular. So essentially he was almost as high up the medical OB food chain in VIC as i could go. He thinks eventhough no clotting signs have shown up in me, madison or the placenta that there is something they have'nt discovered yet to test for that has led to her not being able to get the nutrients she needed resulting in her lack of body weight in a 2 weeks growth period. (every ultrasound up to my 20 week was normal) So he has recommended upon ttc that i start taking asprin at a 150dosage daily to thin my blood flow until my AF arrives, when it does i have to stop until it is over and then resume taking it. if there is a BFP then i continue taking it. Heparin has been recommended as a back up thinner but he takes that decision quite seriously and said it would have to be made at my 6 week ultrasound. I would take heparin until approx 28-30 weeks. he has offered to take me under his wing (
) which eventhough he does'nt come with a happy outcome i feel good in knowing he is basically top of his field and would be getting at least the best advice. My Ob is fine with shared care as he really took madisons passing quite hard and would want only the best outcome. (he has been my Ob for 7 years) Hope my history and now situation helps you. i have googled like crazy too and asprin and heparin are still quite a do we, don't we treatment. Are you going to be seeing anyone soon?
Anyone of you girls done this process and can offer info?
. I had an ultrasound schedules for today. Ten minutes before I walked out the door I got a call telling me there was a mix up and my appt. was canceled.
that all is well, which I'm sure it is. It must be so frustrating to be getting the run around with your appointments. Keep calling and nagging them if you're really worried to see if they can bring it forward?
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