Aspergers/Autism/Sensory Integration Chatter #3

[Turkish Delight]

Thanks for replying MrsMac and Lulu. I will call Chitra at her Donvale rooms to book an appt for DS.

I feel so sorry for him. i wish there was a way that i could help him function/socialise better at school.

MrsMac- you should have suggested that you thought he might be a bit Aspergers, honestly, with you being a teacher, i would have really appreciated it. I am not one to take offence to anything which is said to me easily, if that is what you had thought.

I was just reading about Aspergers before and the kids taking things that are said to them seriously when they are just sarcastic made me remember an experience with him.
Me - "lets just pray that the weather is great on Saturday"
DS - nods his head.
A few minutes later, i see him mumbling something.
Me- "what are you doing DS?"
DS- "well, you did say lets pray about the weather, so i am"


That's only one of the things that is like him.

[murraysmum]

well been a while since ive posted in here
muz is toilet trained
but having sleep issues
also has decided hes a baby again geeezus am i insiane for goingt he 2nd time i dunno how im gonna cop with him and a newborn sheesh

[Lulu]

YAY for TT little Muz!

Maybe baby him till the cows come home - he might get sick of it? I sometimes flood DS with attention and he tells me to rack off

I hope it gets better hun - CONGRATS on the pink one xoxoxo

Turk, if you can handle going into the city you won't have to wait as long for an appt with Chitra. She.Is. Awesome.

DS takes EVERYTHING literally too - no aussie slang around here anymore...

[Early Kids]

I just want to scream. I can't put into words how I am feeling right now, but I've had it. I'm over it.

Sorry for the selfish post I have so much going on right now I want to curl up into a ball away from everyone and everything.

[Lulu]

are they asleep now Sal?

[mrsmac]

Thanks for replying MrsMac and Lulu. I will call Chitra at her Donvale rooms to book an appt for DS.

I feel so sorry for him. i wish there was a way that i could help him function/socialise better at school.

MrsMac- you should have suggested that you thought he might be a bit Aspergers, honestly, with you being a teacher, i would have really appreciated it. I am not one to take offence to anything which is said to me easily, if that is what you had thought.

I was just reading about Aspergers before and the kids taking things that are said to them seriously when they are just sarcastic made me remember an experience with him.
Me - "lets just pray that the weather is great on Saturday"
DS - nods his head.
A few minutes later, i see him mumbling something.
Me- "what are you doing DS?"
DS- "well, you did say lets pray about the weather, so i am"


That's only one of the things that is like him.

Babe I would NEVER suggest it to anyone, I have a friend at school whose son is aspergers and she said that she hated anyone telling her until SHE was ready to deal with it.
I love that completely literal thinking they have, also their awesome general knowledge and how they are so excited by interesting facts.


Sally- huge hugs.

[Early Kids]

Ok, back and cooled down, 2 sleeping kids (an hour early too!)

TD, sorry I can't help, wrong side of the country.

murraysmum, yay for TT! We are slowly getting there (Brendan is 37 months)

Lulu, sleeping now, thankfully.

Ok, so I don't want this going any further and it is to stay off facebook (I realise this is a public area too, but I'm hoping my wishes will be adhered too for respect for my family). Ok so from the beginning, my parents are down because the stupid shire here changed the zoning on my parents block so they had to cancel their caravan trip to come back and remove a sea container from their block. Took them just over 12 hours driving, but they got here. So they got here Thursday night, late. Friday we spent all day removing the contents of their container (a 40-foot one!) and then... early hours of Sat morning we got some terrible news my Grandad passed away around 1am early hours Sat morning. As you can imagine emotions are running high atm, lots to sort out.

I'm already feeling drained, and then I hear about my Great Aunty... she's very very sick, has been given weeks to live. She is on full time oxygen and wheel chair bound. So we are going to go see her on Wednesday, before my appointment for my hernia repair surgery.

Then throw Brendan into the mixture I cannot control him atm, he is just sooo hyper-active. He is literally bouncing off the walls, he tipped the playpen up onto its sides then climbed over it (as in climbed up then across the top and down the other side) I can't turn my back for a sec. My parents keep making comments about how it isn't normal to be acting the way he is. My mum made a comment the other day, she said that if Brendan didn't look her in the eye she would think he was Autistic. I am somewhat relieved that I am not the only one who is seeing these things. I know (and keep telling myself) that he isn't Autistic, but I know that there is something there and something is not right.

There is nothing I can do until our paed appointment (May 11) and I can't bring it forward. I haven't heard from Brendan's new OT and they don't work during school holidays anyway. I'm so frustrated of trying to get through the days with a child that I don't know how to deal with.

Someone please tell me why it matters what colour something is or in which order something is put on. What difference does it make to milo when you add in the milk before the milo? I am tired and drained from trying to work out the triggers, am tired of being screamed at because I get it wrong.

[mrsmac]

Huge hugs hun, what a lot to deal with.
Its so hard to deal with all their traits sometimes isn't it? I have found the holidays worse than usual for that reason.
That very particular thing can be an aspergers trait and we have had aspergers children at school who do make eye contact but then again I have a boy in my class who has been diagnosed as aspergers and doesn't care about routines like that so who knows.

Parents are hard as I know with my dad he felt if my discipline was "better" DS would be fine. He is now voluntarily reading "The out-of-sync child" which Christy lent me and is starting to understand more.

Hope today is easier.

[christy]

First Sally it is disgustingly hard. I'm so sorry to hear about what is going on with your family.

Especially the younger years when they are going through all the same stuff a normal threenager goes through (I have a "normal" threenager here who is very frustrating at times) and yet they are that bit more quirky.

Matilda looks at people in the eyes fleetingly. And once she's met them a few times she's more likely to look them in the eyes briefly. Its only ONE of the signs.

Finding the triggers can be so helpful, and adjusting your life. I was resentful at first at the thought that I had to change the order on how I put the cereal into the bowl, but once I just gave up and did it her way life was more peaceful at breakfast, ykwim? She has the pink cup with her black dinner plate and her special cat spoon and fork still. All to keep the peace, I make sure they are washed and ready for her.... I just thought they weren't the battles I wanted to fight. I was fighting battles such as not climbing the 6 foot fence and running away....

TBH TD, even I wouldn't tell you if I suspected Asperger's. I would probably suggest that you get him assessed if you asked what was going on... encourage you to see a behavioural paediatrician.... I remember when someone suggested Autism to me, it was a dagger....

School holidays are pretty sucky around here, added to that my working 11 days straight.... noice. We gave in and got Matilda a membership to Club Penguin so she can plug into the computer for 30 minutes 3 times a day.... she needs some "regular" activity and "routine" so we thought we'd give her something that is the same everyday.

[mrsmac]

Christy- Erin is VERY jealous about the Club Penguin!!!

[christy]

C don't tell her about it new DS game.... She saved up and got "My Little Pet Shop - City"

[Turkish Delight]

C don't tell her about it new DS game.... She saved up and got "My Little Pet Shop - City"

I can send her DS's Club Penguin game to play for as long as she likes. DS is over it!

[Turkish Delight]

Sally. I can only imagine how tough it must be for you atm.

Honestly, i can understand how it must be tough on some people to be suggested a certain psychological illness about their child. Yesterday, when i was telling my psychiatrist and he said that DS may have a psychological illness, i burst into tears. I suffer from depression and anxiety, so i know how hard it is to have a MI. Again with me and my perfectionism, i want my kids to be perfect. Yes, he can academically gifted, which is perfect in my eyes but having a MI is an imperfection for me. The psychiatrist said that kids with Aspergers will have a normal life as adults, and be academically gifted, he should do just fine. I am struggling with diagnosing as to what is wrong with him and just want to give it a name, so i can help him more, through research.

DS - doesn't have a thing about routine or orderness.

But he won't understand that communication is also about listening. He wants to talk all the time but not listen to what others may be talking about to him or even between one another. he won't listen. He won't listen period. I ask him to do something, and he won't do it, because he won't listen. I help him with his homework and explain an easier way of doing something but he won't listen. he will keep on talking about how hard it is for him

Do you guys have listening problems?

Does your DH/DP help in dealing with your Asperger's/Autistic child or do they leave it up to you? I mean as in attending appts, therapy sessions ect..