The behavioural unit at the mater is quite close and Maria organises all the appointments for incoming appointments and all the phone calls admin stuff. She works closely with the paediatricians. She's the one I phoned when Matilda's behaviours got worse again and I was concerned because things changed in the months between assessments. She had a paed come into the physio appointment just to observe Matilda.
Sorry I didn't say what channel. I was watching it and scarfing a McChicken at the same time I also had to reef the macbook out of Trevs grip so I could post
I thought he did well! His thing is 80's music as that was his teenage years and he can tell you the top 5 for any date in the decade.
Mel I wanted to say that quite often what one would think are typical traits isn't what stands out when they are assessing. eg you say that he makes eye contact and doesn't really throw tanties. Mason was the same most of the time. Eye contact was never a problem and he never really had tanties but when he did they were whoppers!
It won't be one or two "typical traits" that will form his diagnosis but the combination of his quirks and how he interacts with people.
Writing them down will help a lot as I got quite stressed and go blank when I was chatting to the ped and other specialists and they asked me about some things so I had notes to refer to then. Also things that he used to do but may have settled down on doing eg Mason and lining up his cars in exactly the same order along his pillow every night before he's go to sleep.
Thanks Sam. I think that's the clincher for me, the "little differences". Things that don't seem to mean much but when you consider there are a few of them maybe they do. Then having my friend say he's just like her son. And of course the carers constantly asking about whether we've booked him or not - they obviously think it might be something. There seem to be enough signs. I can no longer just tell myself it's just because he's bright. It might be, but I can't be sure.
I have decided to definitely try and bring it forward. I need to know. And I need to know before I choose a school, and at some schools he'll have to enrol by mid next-year. So, wish me luck, I will call Maria tomorrow.
Very very frustrating. No diagnosis, but not letting us go either. They want further assessments done to diagnose. Apparently she was very Asperger's today, but they were disorganised and didn't compile all the results and talk beforehand like they were supposed too. So we have a definate diagnosis of Sensory Processing Disorder, but maybe PDD-NOS or maybe Asperger's, they want further assessing to be sure. We are moving to Sydney in a week, so they suggested we start all over again there.
Oh Chrissy honey that sux big time!
can you ring from were you are now and see what is available down there? Can you book in with your MCHN or something already to get the ball rolling?
Im feeling very under appreciated atm....Wilhelm is in a I hate you mood and everything else is jsut BLAH
Yes Christy a referral from the Mater to somewhere down in Sydney would be handy... it would be good for them to give you a copy of their files/records to take with you...
I've got the OT assessment at least with the diagnosis of SPD and I have the physio report with the low muscle tone and right sided proprioceptive deficits. So at least I have those. They have said they will compile stuff to bring with me and post it to me, so hopefully that will help.
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I also had to reef the macbook out of Trevs grip so I could post
Oh no Christy. I really hoped you were going to get something more useful than that.
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