Barbie up - Hi and welcome. There is a very important lesson I have learnt this past year... mum's intuition is usually right. it is impossibly frustrating and gut wretching when you get mixed diagnoises from professionals and especially when your family don't understand where you are coming from. We took DS to child health nurse at 2 as he had little speech and was showing what I thught was obsessive behaviour, lining up toys, objects had to be in a particular place, watching the same videos hundreds of times in a row and was told not to be silly. Now at 5 he has been diagnoised by one paed as having Pervassive deveopment delay (ie delays in parts of his development but not in any recognisable pattern) Sensory Processing disorder in 12 out of 12 areas of deficiet, one paed said what yours did, that he was probably just a very bright boy who was bored in school and now we are supposed to be seeing yet another paed for his school.
The point I am trying to get at is it is hard for these people who see your child for 15min-1 hr to diagnoise what is going on. My DS had two brilliant days when we went to see Paed, said hello and goodbye and played relatively normally while we were there. the day we saw the OT we were there for 3 hrs and she actually got to see the real Xander and surprise surprise she actually has some awesome tools for us to work with, balance equipment, vibrating cushions, weighted blakets etc which are making a HUGE difference in our ife. But we still have family tell us we are over-reacting or that there is nothing wrong. Mostly I have discovered from talking with my mum who was in denial that she was afraid to admit that there was a problem where as for us we saw the diagnoises as a relief as we then had a way to approach it as otherwise it just meant either he was a "naughty kid' or we were "bad parents"
Nette - please don't beat yourself up about it! Everytime a new study comes out about links to this and that and autism I go through the same thing but what we have to remember is it is not our fault and we have done the best we can. I'm sure even though you may not have been seeing the "experts" you have been helping your child to achieve and develop in their way and you will probably find the therepies are very similar to what you were doing in your own way anyway.




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