Theresa, I'm so sorry to hear things aren't going smoothly. Big hugs. You are a darling mummy and hopefully some time soon Em's issues will be resolved. I really hope Em doesn't need to get a peg, it seems so much more "permanent" than an NG tube, IFKWIM... The non eating is sooooo enormously frustrating isn't it! I wish there was some magic way to get Em and Gus to eat. I'm sorry to hear she's not taking to food better. Is she able to articulate what she's thinking re not eating? I think one of my biggest frustrations is not knowing for sure why he won't eat. Is he scared, does it hurt, is he lazy, does the NG tube hurt his throat, etc etc

Gus is still not eating or drinking at all, other than a few sips of water. I'm so over the night time pump feeding. We had a particularly tough night last night. DH and I feel as though we were up all night. Gus's kangaroo pump seemed to be on overdrive and was alarming at least once every hour. He was crying, vomiting, getting tangled in his cord all through the night. I went through four cot sheet changes overnight - either from the connection point of the tubes leaking or from Gus's vomit. Blahhhh sooooo tired this morning. The worst thing about this non-eating is not knowing when it will resolve. Yucky, I know things could be so much worse, but today feeling so tired I desperately wish Gussyboy would start eating so we could get rid of this horrible nasogastric tube feeding cycle!!!!!

I've heard about a hospital in Austria that specialises in tube weaning. I'll have to email you the link to it. Gus's OT told me about a former patient of hers from London who took her 18mth old son there. He'd been completely NG fed since birth and is now completely self feeding since being at the clinic. Hopefully we won't need to resort to that, but it's good to have that idea tucked away for the future if all else fails. I don't know of anything similar to the Austrian clinic run within Australia, do you?