Kristie I was just wondering if your sons reflux is totally under control with medications? Is the reflux the main thing that has made him FTT? or is he now totally averted to feeding himself?

Parker had severe reflux, that left him with serious eating aversions and honestly thinking back I don't know how we got through it, but I thought for what it was worth, I would mention that until we agressively fought the reflux we didn't see any progress, and more and more side effects from the reflux were emerging. I found with Parker that medication was key and after that eventually he started feeding again.

I also know of a mum who is sucessfully weaning her son from the tube and he is now up to 40% calorie intake by mouth, and this is a kid who would put nothing in his mouth, so it is possible.

It is just so hard when people and doctors don't understand how serious reflux can be and that it doesn't always go away when they magically reach age one, and that the complications and emotional aspects hurt real bad.

So I thought I would mention it, because it got till Parker was 14 months before FINALLY a doctor gave us the right information, the right meds and got us on track.

Mikienzeesmum