hey guys i dont know of use have noticed i havent been on here the last week kenzee had her operation last week a Nissen fundoplication which is to stop her servere reflux and was ment to make her not need to be tube fed any more but unfortunately that is no tht e case with kenzee she is stil refluxing gagain and chocking like mad and isback to being totaly tube fed on a continuos feed, she is still in hospital we have just popted home today to get some more supleies and wil be going back in about an hour
Needles to say I am feeling a bit down at the moment kenzee as you know is one year old and she now has 6 scars on her tummy and is back in newborn nappies
She is stil on reflux meds and they have just started her on a motility med to tery and get the feeds to digest but we will see im not holding my breath
the plan is to get her of the tube with in 3 months but im not holding my breath, so we are in hopsital until she gains some weight and stops gagaing and retching all the time they are doing a Upper gi this week to see if the fundoplication in intact and not to loose or too tight if it isnt then she wil need another operation
so right now we are facing posibley another 3 ops on her tummy a gastrsotomy, a pyloryplasty and another fundo none of this is definate but isnt ruled out
we have been told one again my daughter is a very servere case and that its not going to be an eaasy one to figure out she has a very complucated GI disorders im so sick of it i wish it was as simpe as some people think it is
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