Hi girls, No change on our front. Gus is still not eating anything at all or drinking anything other than a few sips of water. I ran into a woman at the park yesterday. She is a nanny to a little girl I know from the park, anyhow that part is not the relevant bit. The nanny was saying she has an adult friend who had to be NG fed for about 6 months due to some medical complication (the nanny didn't remember the details) and when it came time to wean her off the tube and back onto eating, she found she couldn't eat. She had no history of eating disorders/anorexia etc but still found her body couldn't seem to cope - either at the mouth chew and swallow level or at the gastro-intestinal metabolism level. So she had to go to a clinic for anorexias who are returning to eating. Apparently they taught her to eat. It was a slow process and she was apparently quite the chubby one at the clinic, being the only client without an eating disorder/anorexia type issue. So the nanny said to me that she thinks I should bear that in mind when trying to get him to eat. When you think the nanny's friend had a lengthy history of being an eater and still found it hard, I guess it's not surprising that it is so hard getting Gus to eat.

Hi Theresa, Glad to hear you're at peace with the PEG idea. Well done!
I'd love the details of the support groups you guys are with. So far we've been going it alone (other than with support from BB and to a lesser degree from Austprem)...