Kelly sorry to hear that Marisa is going through this.

One thing that I have always said is that the unknown is worse than knowing. Its a weird place to be, because one part of you is devastated by the dx, but the other part is completely relieved that there is an answer to all the worries. Just being able to finally do something, instead of thinking what the hell am I suppose to do to fix this!

It is a horrible thing to have to see your child take meds. But I will also say that when you see the improvements it is also a relief and it makes it a little easier.

Like Rayla said talking to other parents is a good thing. I found that its not just the picking up hints here and there from them, I found that knowing that their were parents out there that could completely understand what your going through the biggest help. And like Rayla, one of the best things to do is believe that it can be beaten. Some may say its false hope, but knowing that they will find a cure for CF is the only thing that keeps me sane.

I hope you have luck in finding someone fantastic to treat Marisa.