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Thread: I might have endometriosis

  1. #1
    Lynny Guest

    Default I might have endometriosis

    Hi all

    I went and saw the gyn today and she booked me in for a laparoscopy and hysteroscopy on the 17th March to see if I have endometriosis.

    I've been reading up about it and it doesn't scare me half as much as actually having the surgical procedure to find out if I have endo!! I'm a wuss! But I've never been in hospital before so yeah I'm a bit nervous to say the least.

    Has anyone else had a laparscopy before and what was your experience with it? Is it really soo bad? Or am I worried about nothing?



    8-[

    Thanks guys

    Lyn

  2. #2

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    Hi Lyn

    I have had 2 of them, and it is only day surgery, so you will go in during the morning and be home that night. you will be feeling a bit sore and sorry for yourself though. Also they fill your stomach up with gas to move organs etc out of the way, so if you get a bad pain in your shoulder after you are awake don't stress as it is perfectly normal as it is from the gas apparently and is quite common.

    Are you having dye studies done as well. If so beware of peeing the colour of the dye for a day or two LMAO. I was back on my feet 24hrs after the surgery.

    Love

  3. #3

    Join Date
    Sep 2004
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    WA
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    Lyn - I've had 11 of them because I have severe endo. Before you go there you need to know that adhesions caused by surgery can inhibit fertility later on - a catch 22 - it's not something to take lightly. Who is your surgeon? I definitly recommend getting a second opinion.

    My surgeon is Dr Yovich at Pivet - he is hard to get into to see - but well worth it when it comes to endo ops, he is one of the very very very best.

  4. #4
    Lynny Guest

    Default

    Astrolady, thanks for the info. I've read about getting the shoulder pain. I don't think I'm having the dye studies as they didn't mention it to me?

    Sherwils - wow 11! I'm freaking out about having my first one! I know you don't mean to alarm me but you're definitely right about being careful with regards to fertility. I saw Dr Harris at Glengarry for my gyn appt today. I forgot to ask who the surgeon would be as I was a bit overwhelmed by the whole thing. Will find out though.

    Thanks so much for your replies guys.

  5. #5
    kewpy Guest

    Default

    I think the others have given you a great insight already. I have had two and one was not a nice outcome, a complication arose.

    I strongly suggest you understand fully what you are consenting too and make sure they give you some handouts and make you aware of all aspects of the surgery. Contact the endo association in Victoria as they have great information on all too.

    Also, you should be provided with full details of the outcome of the surgery together with photos. Make sure you understand everything that is happening at all times.


    Best of luck.

  6. #6

    Join Date
    Feb 2005
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    Perth
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    Default

    I am just over my recovery from my 3rd lap, 3 weeks ago.
    I get them done at KEMH by my Dr who I also see at Hollywood Fertility Clinic for my TTC.
    I must admit that each one has had different recovery time, I guess because it depends on what's on the inside. My endo isn't too bad but I have alot of adhesions holding my bits & pieces in the wrong places.
    I am hoping to be PG soon so I can have a break from all the endo worry of it coming back, pains, etc
    My main advise is to take it easy (you don't realise how much you use your abdo muscles) and don't be afraid to use the pain meds they give you.
    I'm sure you'll be right.

  7. #7

    Join Date
    Feb 2005
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    Lynny,

    I was a bit scared having my laparoscopy. It was the first time I have had any sort of surgery at all so I was a bundle of nerves. Your doctor will come in and ask you if you have any questions so it might be best if you start thinking of what they are at the appointment before the lap. I think on the day, you are too nervous to remember and you really don't want to be thinking about much before going into surgery.

    TMI WARNING: If there is something I can recommend, ask your doctor about bowel prep. Apparently it is necessary if there are lesions on the bowel that might have to be removed. I wish they had told me about this before my laparoscopy. I vaguely remember Dr Hale telling me they had to do something like that for me when I was under anaesthetic which I was less than thrilled about! I would have liked to be given the option to prepare my bowel in the privacy of my own home.

    Tam is right about the abdominal muscles. I think my lower back hurt more than anything. I slept partially upright on our futon for at least three nights. I couldn't lie flat because of the pain in the shoulders due to the leftover gas from the procedure.

    Kewpy mentioned handouts and photos of your surgery - I got photos of mine which was good because you can see clearly what was there and what it looked like after it was removed. The handouts the doctor gives you are from the RACOG and explain the procedure in a little detail.

    As far as pain relief, Panadeine is great and there is a marvellous thing called DeGas which you can get from the supermarkets. I think it is worth its weight in gold. It is made from a safe and natural substance and is easy to take. It disperses the build up of wind in the body very quickly.

    Also, the only other thing I think is worth mentioning from my perspective is that even though you will feel better quite quickly after the operation, don't be too hard on yourself if you are not ready to go back to work after the standard three days. Take as long as you need to feel better.

    I hope this all helps and GOOD LUCK!!

  8. #8
    Sammi Guest

    Default

    Hi Lyn,

    Don't worry, it's normal to be freaking out a little over your first op. 2 yrs ago I had a laparoscopy and hysteroscopy to have endo and polyps removed. I was so nervous about it. The nurses and doctors were so nice and took such good care of me so I was lucky. My gyno is the Gold Coast's leading IVF specialists etc so he really knew what he was doing thank goodness. I didn't have any pain in the shoulder. No nausea, except straight after the op and that was only because I ate a meal straight after I woke from the anaesthetic, so I'd suggest no food until morning.

    The recovery is quick, it'll be over before you know it and you'll be so much happier after facing your fear. I was so proud of myself after my op because all the worry was over. It's never as bad as you think it will be. Good luck. O


    Sammi

  9. #9
    Sophie12 Guest

    Default Endo info

    Hi Lynny,
    My twin sister had the same this time last year - she went in for the procedure and was also very nervous. She said that the staff nurses etc were all very very good before they put her under and once she woke up -When she did wake up, they told her that she did have Endo, but they had got it all and it wasnt too bad. The scar they gave her was TINY and it can only be seen now when she points it out.

    I won't lie to you, she was in a bit of pain when she came home and that lasted for a week or so - she just had to be really careful and gentle with herself - lots of rest.

    Going into hospital is scary - I had a colonoscopy about 3 years ago, but the Drs reassure you and know what they are doing!

    Good luck - fingers crossed for you.
    Belinda

  10. #10
    kewpy Guest

    Default

    Just have something else to add

    Everyone's recovery time is different for this operation and it also depends how much work is done. There is no standard rule that you are back on your feet in a few days or week or two.

    Also, make sure you understand upfront that if they do find endo, how are they going to remove it. Ie, cutting it our or laser gun. Some people have prefence for one over the other as there is fors and againist for both of them.

    Best of luck.

  11. #11
    Lynny Guest

    Default

    Hi everyone

    Just wanted to come and let you know all how it went. I went in yesterday for the op and I was apparently in there for about 3 hours. When I woke up in recovery my Dr had written me a note with the pictures saying that I have severe endometriosis

    I had to stay overnight because the Dr wanted to see me in the morning. Part of my bowel was stuck to my left ovary so they separated that and cleaned out all the endo. Dr Harris said it was quite severe. She also said that my tubes are blocked and she tried to put the dye through but it didn't go through my tubes. So the only way I'll be able to get pregnant now is through IVF

    I was pretty shocked and cried but the nurses were very good. I honestly didn't expect that it would be so bad. I had convinced myself that they were going to tell me I'm all fine and send me home.

    Today I'm a bit sore and sorry but they have given me some drugs to take and I had some pethidine when I woke up from the op. I have 3 dressings so 3 little scars I guess.

    Thanks all for listening and taking the time to give me advice beforehand.

    Kind regards

    Lynny

  12. #12

    Default

    Hi Lynny sorry to hear it wasn't the news that you had hoped for. @ your tubes being blocked as well. Will you be going down the IVF path ? if so feel free to join the girls also doing IVF

    Love

  13. #13

    Join Date
    Sep 2004
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    WA
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    Lynny - I'm so sorry for welcoming you to the severe endo party. If you have any questions don't hesitate to ask here or PM me. We can meet if you like too!

  14. #14

    Join Date
    Mar 2005
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    Default reply to lynne

    Hi Lynne, i no this is a day late being the 18th and i hope all went reaaly well for you. I have had 9 opreations for endo as i call it, i am 31 nearly 32 and have had a baby boy nearly 5mths ago, and at 21 they told me i'd never have kids, i now have a 3yr old daughter Nyah and now William, but in regards to your procedure i hope it went well. Take it easy Nadia

  15. #15

    Join Date
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    Hi Lynny,

    I'm glad that your procedure is out of the way, but I am sorry that you've found out you have endo. It sounds like the doctor did a very good job at cleaning it up for you though. This is all good!! I know what you mean about the shock though. I think it took a few days before it hit me. I wasn't surprised that I had it ... just sad that I had had it for so long and it had gone undiagnosed.

    Please feel free to email me if you would like to chat about it. There are also plenty of us in this forum who have similar experiences and would love to help out if we can.

    Rest up and be good to yourself.

    Love,

    Melissa

  16. #16
    Lynny Guest

    Default

    Thanks girls

    Feeling a bit better today but the shock is still sinking in. I guess I will be joining the IVF thread soon enough Astrolady. I'm still sort of hoping I guess that I will still be able to conceive naturally....I'm in denial I guess.

    Melbo, I'm also disappointed that the doctor had said I had probably had it most of my adult life too. I keep thinking that I wish I could've done something earlier on.

    But I know that I can't change anything, it's done now and I've got to look forward to the future. I'm a barrel of mixed feelings at the moment!

    I am just thankful that I still do have the chance to have a baby, it doesn't matter how. And as Nadia has said, I have also had friends and family say to me they were told they couldn't have children and all of them ended up having them!

    Well, thanks for listening, I've sort of babbled on a bit

    Lynny
    xx

  17. #17
    kewpy Guest

    Default

    Thank you for touching base and letting us know how you got on.

    I am very sorry that you have been dignosed with endo. Yes it does take a while to sink in. Grab yourself some books to read up and learn about the disease if it helps or contact the association for information. You are not alone, we are all here to support you.

    Take it easy on yourself recovery wise too, don't push yourself. There has been a lot of work done inside and it will take time to heal.

    I am another one, my specialist thought that we would have a very hard falling pregnant and gave us fertility assistance as soon as we started to try but it didn't take us too long to fall pregnant and now we are expecting in early July.

    Maybe some others can answer this question but if your tubes are blocked, how come they can't clean them out and unblock them?

    Good luck Lynny and keep in touch, we are all here for you and understand what a rollercoaster endo is.

  18. #18

    Join Date
    Feb 2005
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    Lynny,

    I hope you are one of the lucky ones who conceives soon after the operation. Apparently this is quite common so I have my fingers crossed for you!

    Love,

    Melissa

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