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Thread: Level 4 Endo

  1. #1

    Join Date
    Dec 2006
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    Caboolture QLD
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    Default Level 4 Endo

    Hi Guys,
    My best friend in the whole world has been disgnosed with level 4 endo and her bowel, uterus, tubes and overies are fused together... she goes in tomorrow to hae it cut away and so after that we will get the prognosis of if there is just no chance and her bits are complelty chocced up with the endo or there could be a chance that she might be able to conceive still.



    Is there any one that has has level 4 or know anyone to have level 4 endo and that managed to have a baby... naturally or through IVF???
    Thank you sooooo much for your responses in advance
    I would love to be able to give her some hope.... she is doing really well with the whole thing.... but this is all prior to the op.

    TAI!!!
    xoxoxoxo

  2. #2

    Join Date
    Oct 2006
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    Perth
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    Default

    Yep me! I was diagnosed with severe endo in March 2005. My left ovary was adhered to my bowel and both of my tubes completely blocked. Endo was riddled throughout my pelvis. The gynae at the time told me that I would never conceive naturally and would need IVF. The IVF specialist told me that I would have a 30% success rate.

    Fast forward to now and I am about to give birth to my baby in a couple of weeks - conceived totally naturally and out of the blue and unexpected but a welcome miracle

    Best wishes to your friends upcoming surgery, hope I have helped in some way.

    xox

  3. #3

    Join Date
    Dec 2006
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    Caboolture QLD
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    Default

    Oh that is WONDERFUL Laranna!!!
    CONGRATULATIONS!!

    That is really great to hear!!
    I have passed on your story to her and I hope that this might give her a bit more positive energy for tomorrow and what they outcome might be

    Do you mind if I ask how your pregnancy was?? Did you carry ok ?? were you able to work or was it rest at doctors orders??
    Sorry to pry but just wondering if I can pass on more good story
    thank you so much
    Cheers
    Kirst
    xo

  4. #4

    Join Date
    Oct 2006
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    Perth
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    Default

    My pregnancy has been great so far. I didn't get much morning sickness, just a bit of nausea and felt super tired which is normal I guess! I'm 36 weeks 2 days now and have put on 9kg. I finished work last week.

    The only excitement I had during my pregnancy was that I had appendicitis at 18 weeks and had to have my appendix out. But that wasn't really anything to do with the pregnancy, just one of those things and bad timing! Have recovered well from that despite being pregnant with a growing belly.

    I did have a corpus luteal cyst on my ovary but that is common in pregnancy as it was where I ovulated from. It had decreased in size by my 20 week scan and gone altogether by my 32 week scan.

    Yeah so nothing bad really. Oh I have mentioned this book before in other threads because I think it is REALLY good and helped me understand alot of things after I was diagnosed with endo, it is called Endometriosis and Other Pelvic Pain by Dr Susan Evans.

    I hope your friends surgery goes well and if you have any more questions just ask me

  5. #5

    Join Date
    Dec 2006
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    Caboolture QLD
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    Default

    Oh that is so awesome to hear
    Franny thought her big problem might be carrying... but the specialist has already told her that if she can get pregnant that it will help with the endo anyways.

    I had a bit of a giggle about the appendix bit as I have just got news of her op... she is out and all good... took about 3.5 hours all up... but she lost her appendix in the argument!! he he he (that was her words)

    Thank you for sharing your story with me so that I can pass on the wonderful possibilities
    When the time comes and they start trying I will definatly be putting her onto Belly belly so if its ok with you I might give her your user name and maybe she could PM you.

    Thanks so much again!!! And good luck for the coming weeks!! Child birth is all fun and games but the beautiful little bundles of gooey baby are so awesome! he he he...
    xoxoxoxoxoxox

  6. #6

    Default

    I was another Severe case. Was riddled with Endo and they wanted to give me a hysterectomy. They asked me the same night I came out of surgery. I was also told I would never be able to have children.

    3 kids later, all naturally conceived. Just a gene disorder was my only complaint through my pregnancies

    Love

  7. #7

    Join Date
    Dec 2006
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    Caboolture QLD
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    Default

    Oh Wow!! Thank you Kathryn
    I will so be putting fran onto this site once she is better

    THANK YOU SO MUCH both ladies for your inspirational stories!!
    oxoxoxoox

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