thread: Results are in...I have antiphospholipid syndrome

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  1. #1
    Registered User

    Mar 2008
    mid north coast, nsw
    1,644

    FG- thanks...I knew you would understand the way I feel, and I am encouraged by you and your progress
    I have to see a haematologist next to do more tests and check out a clotting result which was a bit abnormal, given my other results. A lot of what the FS was flying over our heads by the end to be honest, but I know that's my next step.
    And thanks for the tip on the script...I will get it filled out, because while we are trying naturally, I want to be ready should another miracle BFP come our way.
    I was also wondering about the differences between heparin and clexane.

  2. #2
    Registered User

    Oct 2007
    Vic
    617

    Possums,
    I started low dose asprin (100mg x 1 tab per day), on drs orders as soon as I had the diagnosis - so it might be worth asking if you need that as well as the heparin/clexane (you dont need a script for it - can just get it over the counter at any chemist). As far as I understand it I will keep going with the asprin for the entire pg.

    I started the heparin on the day of the transfer. Because I only tested positive to the antinuclear antibodies, and not the lupus antibodies as well, I will stop the heparin at about 20 weeks - if all is ok with my scan. I think that the girls who test positive to both sets of antibodies stay on the injects till at least 27wks as the risk are higher.

    Long term heparin use (not sure if it is the same for clexane) can contribute to osteoporosus (sp!) - so upping your calcium intake can be a good thing - my ob told me that as long as you are on pg vitamins with calcium and drinking milk/eating cheese (which I consume lots of both) you should not need to take extra suppliments - but again check with the specialist.

    On the positive side...these are the stats that the haematologist I went to gave me...if you have had 3 miscarriages, the chance of you carring to term on your 4th would be about 10%, if you take asprin alone, it increases to 30%, and with heparin and asprin increases to 80%. So there are still some people that will have trouble, but the way I looked at it - for once with this whole IVF journey the stat are finally in our favour!!!

    Good luck with your appointment and ask lots of questions.
    I'll be thinking of you and wishing you all the best. Hang in there...oh and dont buy a bikini for when you are preg - when you do get pg your tummy will look like a soccer ball - rounded and black and white with bruises and then the spots that you have not yet injected into!!! (I call my belly a speckled dinosour egg)
    FG

  3. #3
    Registered User

    Mar 2007
    Sydney
    1,365

    Possum, glad to hear that you have answers for your baby angels.
    Take care and rest up and am sure your FS will have a grat action plan when you are ready to go again

  4. #4
    Registered User

    Mar 2008
    mid north coast, nsw
    1,644

    FG -thanks for all the advice...I have so many questions now I wish I had asked my FS, but we were sort of in shock a bit and trying to assimilate so much! I think I will have to call or maybe email her with my questions.
    I have also been wondering about the aspirin. I only tested positive to one set of antibodies.
    I am glad you can laugh about your tummy, but in reality I am sure the injections arent much fun. At least they are doing their job i guess.
    I am also not sure how much monitorin will be required in the pregnancy or how that will work here, where we dont have the option of private care after 12 weeks when we get referred to the hospital clinic.