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thread: Post Tubal Ligation Syndrome

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  1. #1

    Dec 2005
    not with crazy people
    8,023

    I had my first ob's apopintment last week and asked about getting my tubes redone after this baby. OB said no way as I feel pg 3 times when my tubes were done and he said that Id the chances are high that I would fall pg again with them done. I have not had any pulling or pain in my 'side' since I had my clamps removed and it was been 1 1/2 years. DH is getting the snip this time round as we really think 4 children is enough
    Good luck

  2. #2
    poolchickk Guest

    Hi everyone, I am new to this but have been reading all your posts regarding post tubal ligation syndrome. I too have all symptoms of this and doctors just don't seem to want to understand. I have been tested for practically everything and everything has come back normal. I was wondering does anyone know of a doctor or obstetrican that does believe syndrome that is situated in Victoria. I am interested in having mine reversed.
    Thanks everyone....

  3. #3
    ~Aquarius~ Guest

    Smile

    Hi Guys

    I haven't been on since March, and certainly didn't expect to see this thread had been so active!

    Well an update on me.
    Since my OP a couple of my symptoms have calmed YAY! The one that sticks out is the O pain!
    Man it's been great!
    I haven't had a reversal, I have been onto DH about going and seeing about one. Although atm is majorly out of our price range. Upside I am back living on the coast, so close to any specialists if in the future I do end up getting my much wanted reversal.
    And the other news. We have both decided we might try to have another baby one day down the line. Who would have thought *shakes head* I was so adamant that was it! But my goodness I can't shake it. So in preperation, I have looked into IVF if we do decided yes for sure. Unless of course DH agree to the reversal., and we win lotto

  4. #4
    Registered User

    Dec 2006
    Brisbane
    1,422

    I did the reversal and some of my systoms went away thank goodness. But after waiting a year and no babies we decided to go IVF which I wish now we had of done from the start(would have been much cheaper). So we did our first IVF thru Westmead IVF clinic in Sydney(heaps cheap i must say) and got twins which was just wonderful. We did lose one baby at 8wks but Im now 22wks and going strong.

  5. #5
    Registered User
    Add aussienic on Facebook

    Feb 2005
    Boyne Island
    6,327

    When did all of you start getting symptoms? It has been 5 nearly 6 weeks since my tubal and I feel no different to before. Hoping I am going to stay this way

  6. #6
    Registered User

    Dec 2005
    Home of the Winery Walkabout!
    944

    Hi ladies
    I had my TL back in January 2007, and even though I know it was the best thing for me(I'm RH negative and my body tries to kill the baby while I'm pregnant!), I hate my side effects. For 2 days before AF shows up I go into cramp lockdown,the cramp starts from my shoulders and heads down to my side! I am stuck in bed for 2 days. It is shocking! It gets to the stage that nurofen doesn't even ease the pain. Is it possible that the clamps can "move"???? I swear I feel mine moving occasionally.

  7. #7
    Registered User

    Dec 2006
    Brisbane
    1,422

    iT WAS A FEW months after having it done. 6 from memory

  8. #8
    Registered User

    Dec 2006
    Brisbane
    1,422

    Its really a HUGE decision

  9. #9
    Registered User

    Sep 2006
    1,435

    Hi all. I had a tubal ligation after Aston 14mths ago. Nov 06. AF returned when he was 3 mths old (much to my horror! I was expecting to get to at least 9mths, and as not having AF is a possible way to keep endo at bay for a while, i was dissappointed) When AF returned it returned with a vegence! in the past after being pregnant for 9mths, no AF for at least 9mths, when it did return it was not with all the horrible pain that I have endured for years, but relatively easy affair...which would gradually after a couple of years return to the horrid affair. so I was shocked to be in PAIN right away. and the PAIN just go worse and worse. each month. I was convinced the endo was back... the pain was so similar, but at the same time worse. if that can make sense at all!... after I ended up in hospital in october because the pain was so unbearable, being referred to a gyne, and finally having an lap in December...thinking I would have releive soon, the endo would be removed, and I would feel better. But NO... there wasn't any endo, and there is still friggin PAIN, ...

    Anyway, the only conclusion I could come to was that the only thing different after this baby, to my other two was I'd had the tubal ligation done. Did some research... and there are other women out there experiencing the same thing??? but when I asked the gyne if this could be the reason for my pain... NOT LIKELY... don't get it, dont get it at all.

    after that garble... sorry, but its almost a relief to get that out... I need to know has anyone here had a reversal, and had relief from the pain???

  10. #10
    Registered User

    Sep 2006
    1,435

    Unhappy The Pain!!!!

    Hi all. I had a tubal ligation after Aston 14mths ago. Nov 06. AF returned when he was 3 mths old (much to my horror! I was expecting to get to at least 9mths, and as not having AF is a possible way to keep endo at bay for a while, i was dissappointed) When AF returned it returned with a vegence! in the past after being pregnant for 9mths, no AF for at least 9mths, when it did return it was not with all the horrible pain that I have endured for years, but relatively easy affair...which would gradually after a couple of years return to the horrid affair. so I was shocked to be in PAIN right away. and the PAIN just go worse and worse. each month. I was convinced the endo was back... the pain was so similar, but at the same time worse. if that can make sense at all!... after I ended up in hospital in october because the pain was so unbearable, being referred to a gyne, and finally having an lap in December...thinking I would have releive soon, the endo would be removed, and I would feel better. But NO... there wasn't any endo, and there is still friggin PAIN, ...

    Anyway, the only conclusion I could come to was that the only thing different after this baby, to my other two was I'd had the tubal ligation done. Did some research... and there are other women out there experiencing the same thing??? but when I asked the gyne if this could be the reason for my pain... NOT LIKELY... don't get it, dont get it at all.

    after that garble... sorry, but its almost a relief to get that out... I need to know has anyone here had a reversal, and had relief from the pain???

  11. #11
    Registered User

    Dec 2006
    Brisbane
    1,422

    Ive had the reversal done and free from any side effects now.
    No more playing god for me

  12. #12
    Registered User

    Sep 2006
    1,435

    mumof5 - did you have extreme pain that I mentioned? I don't want another baby, I just want to get rid of the pain!!

  13. #13
    Registered User

    Sep 2006
    1,435

    i went back to the gyne for review after the lap I had done in December - my options - go on the pill and see if it decreases the pain, by taking it constantly and having no AF, try the proestergon (sp) IUD... or have a hysterctomy with no guarantee that the pain would stop anyway... wonderful.

  14. #14
    Registered User

    Feb 2008
    newcastle
    161

    Tubal Ligation Reversal.

    Yes I understand the mood swings, some days I can be happy and others really down, my doctor also said that my symptoms are not to do with the T/L and just gave me a referal to have them reversed, I have an appointment tomorrow with the newcastle based private team to see about getting them reversed (they are the ones who charge $7600). I did read on here somewhere that a lady had here T/L reversed in a public hospital and waited 10 months on a waiting list.
    The good thing about private is that they said I would have the op in 6 weeks time and that I get to stay in a private hospital for 3 days (public kick you out asap) so I get plenty of time to recover. Just the cost - It's a lot of money and I could probebly get IVF cheaper ?????.....

  15. #15
    Registered User

    Sep 2006
    1,435

    Angry

    What I don't get is how the medical profession can proclaim that the symptoms we experience are NOT from the T/L yet there are so many of us who experience these symptoms post T/L. HELLOOOO?????!!!!!!!

    I think I need to find a female doctor how HAS had a T/L and has experienced the symptoms herself! and I bet that will be harder then finding a needle in a haystack.

    Have we all collectively become Psychotic and decided that we want to manifest pain???? I'm so p!ssed off at the moment - in a world of pain, and are sick of being told that it has nothing to do with the T/L!!

    ARGHHHHHH!!!!!!

  16. #16
    Registered User

    Feb 2008
    newcastle
    161

    Yep they love to pass the buck.....
    I have just been Informed from chat tubal reversals #13 that one mum did ivf instead of T/R, and fell first go, it cost her $1440 start to finish with $348 cash back.
    and they offered to fix her tubes whilst having the c/s for free as they were already in there But she declined that offer.
    I think I might try Ivf and hope that they offer me the same when i have a c/s to deliver (if I fall that is).
    I will certainly be giving them hell about it as they never told me of any side affects and think that I would not mind getting fat or mental.....
    I have just told my partner bout Ivf and he said do I have to give a sample LOL and I replied if you want to be the dad "YES".... we need to ban together and fight for Justice on the doctors who misinform us about the affects of T/L or dont tell us at all.... maybe we could sue their ARS# they also dont inform you of the cost to reverse it, you cant even claim it with private health Insurance (though maybe the hopital stay).....

  17. #17
    Registered User

    Apr 2008
    26

    Hi Aquarius,
    My gosh while reading your first post to this thread I pretty much ticked off all the boxes re PTLS.
    I have my tubes tied in Oct 2002 after my fourth baby and have experienced nothing but problems ever since. Here I was thinking it was all in my head and not knowing anyone else that has had the procedure I have not really had anyone to talk to.
    I am going to do a bit of research on the net to arm myself with info to take to my GP and see what can be done.
    Thankyou for if I had not read your post I would be none the wiser and still miserable.

  18. #18
    Registered User

    Apr 2008
    26

    I went to bed last night and while thinking about all I had read yesterday in regards to this syndrome I found myself crying tears of relief, that I have possibly found the reason for all that has been happening to me over the past 5+ years.

    How I have managed to hold it together for so long is beyond me. I guess I just came to except what was happening as normal and never questioned enough. Mind you the amount of times I went to the doctor for the same complaints and he never picked it up. How can doctors be so blind to what is happening to all the women that suffer this way and not really be willing to acknowledge that it is a real condition?

    I have always regreted the decision to get my tubes done and feel in alot of ways I was railroaded into it. I never really received any counselling before hand and was certainly not told of any of these side effects for if I had I would not have consented. I wish now after all these years I had stayed true to myself and not gone through with it, but the damage is done and it has cost me alot in more than just monetary ways. Now to find a solution so that I can be a better and happier me.

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