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thread: Please help me understand

  1. #1
    Registered User

    Aug 2008
    Melbourne
    1,539

    Exclamation Please help me understand

    Hi

    I miscarried at 5 weeks starting 5 April. Bleed only for 3 days then stopped. Then a week went by and I bleed again (heavily) for a full week. HCG levels have been monitored since m/c - they plateaued AND have been rising as follows:

    3 April HCG @ 3131
    6 April @ 4577 - around time of m/c
    8 April @ 4055
    22 April @ 816
    22 April - same day - internal ultrasound by the professional ultrasound place - they saw absolutely nothing - checked uterus and checked for ectopic.
    27 April @ 1266
    today @ 1491



    I am going in for another proper ultrasound at the specialist at 4:30pm today. I want to be prepared. What could be going on? What are they going to look for other than left over product that they didn't see on 22 April? Will a D&C take care of this (I have one tentatively booked for Friday - I told my dr that if the 4:30 U/S showed anything, I wanted it OUT before the weekend).

    I feel like I am being tortured and am not getting answers (they say they don't have any for me at the moment).

    Please, please tell me what you think.

  2. #2
    BellyBelly Life Subscriber & MPM

    Feb 2007
    Melbourne
    5,462

    I'm so sorry for your loss and I'm sorry you are going through such a confusing time right now. I don't really have any answers for you, just sympathy. I had my first m/c in January of 2007 and they couldn't find anything in my uterus during the u/s, but they did find a small mass in my right tube and believed it may have been an ectopic pregnancy. My hCG levels were checked regularly because apparently they can rise a little, but mine didn't and my body took care of everything. It was a very confusing time because no one could tell me for sure what was going on and no one from the hospital called me with my BT results (like they promised they would), I had to jump over hurdles to get the results.

    I guess they will check your tubes again today? I hope you get some answers, I really do understand how frustrating the not knowing is. Wishing you all the best .

  3. #3
    Registered User

    Sep 2006
    Beaudesert, QLD
    1,169

    so sorry hun that this is happening

    i cant offer any advice, but i just wanted to let you know that i am thinking of you and hope and pray that your ok

    please when you feel up to it, let us know how you are going

    we are all here for you ok, cry, get angry, feel sad, just vent away cos we will be here for you to help you through

    take care sweetie xxx

  4. #4
    Registered User

    Aug 2008
    Melbourne
    1,539

    Thank you so much Trish & Mummy2Chloe - and I am so sorry that you have also experienced miscarriages - they are so hard both mentally and physically.

    Trish - how far along were you when they were able to see the ectopic?

    I just returned from my U/S - I grilled the dr who performed it and then spoke to my FS. Basically, they still can't see anything definitive..and this is highly unusual (lucky me). Based on how I'm presenting (my HCG pattern, what they see/don't see on my U/S, the fact that I have had very little pain except for the cramping that came with the bleeding), my FS believes that I have product left (this is actually best case scenario for me at the moment so I'm actually happy about this).

    I was presented with 2 options:

    - wait and see at least a week - with time, whatever is in me will grow - and when it grows they should be able to see it
    - have D&C on Friday - to remove suspected product

    I chose #2 - having D&C on Friday - given that this is the likely situation, I just can't mentally handle waiting. My FS said that she will immediately know from seeing what is removed during the procedure whether there was product left so that when I wake up from the anesthesia, she will be able to tell me.

    Downside and worse case - I have procedure and there is nothing. They have explained that the one thing they are sure of is that something is going on. HCG levels NEVER rise for no reason - thus somewhere in my body, something left from my pregnancy is growing. If it is not in my uterus (and thus not removed by a D&C), it means that it is probably ectopic. As they can't see the ectopic on the scan at a point in time when I would be 8 weeks pregnant, it would be most likely that it is an ectopic that is on the fringes of my tubes - where they abut the uterus (does this make sense? I am recapping what I think my FS said). I think my FS explained that if this is the case, they will not be able to address the problem via keyhole surgery (which is what would be used for an ectopic that is wholly in the tube). The only option would be that drug that begins with "mex.." something - this is used sometimes for ectopics. The big downside of this drug is that you are not allowed to conceive for at least 2 months after taking the drug. As you can see from my signature, I am too old to have to sit out 2-3 months. To me, this would be a really, really sad and devastating outcome. I am wishing and hoping that they find product on Friday - otherwise I think I will lose it.

  5. #5
    Registered User

    Mar 2007
    outer South East Melbourne
    2,881

    I'm so sorry you are going through this. I hope they have an answer for you soon.

    Stay strong.

    Me 42 DS 10 months
    3

  6. #6
    Registered User

    Sep 2006
    Beaudesert, QLD
    1,169

    oh crickey, i am so so sorry darl

    this must be so very stressful for you, its hard enough to go through a miscarriage but to have this happen as well must be so hard. its very strange though isnt it?? that your levels are still rising but yet they cant see anything. i really hope they find something on friday sweetheart. i would hate to have to wait a few months as well, plus the last thing you want is it to be eptopic. i just wish i had the words to help you feel better.

    please please take care and know that i am thinking of you and will be thinking of you on friday

    once again i am so sorry that this is happening

  7. #7
    BellyBelly Life Subscriber & MPM

    Feb 2007
    Melbourne
    5,462

    I'm sorry they weren't able to answer your questions today.

    I was approx. 6 weeks pregnant with my ectopic pregnancy. I was also told about the drug you are referring too and was told the same thing about waiting to TTC, I am praying you won't need to worry about having it, that they will find something on Friday.

    You will be in my thoughts and prayers .

  8. #8
    Registered User

    Mar 2007
    1,564

    OMG Julie so sorry you still don't know what's going on

  9. #9
    Registered User

    Mar 2009
    Newcastle
    18

    I'm so sorry that you are going through this buliej, I'm praying that you get some answers soon and the best possible outcome for you. The waiting and not having definitive answers, on top of the stress of the miscarriage itself, must be just about unbearable for you. Please know that I am thinking of you.

  10. #10
    Registered User

    Mar 2008
    mid north coast, nsw
    1,644

    Hi Julie, thanks for pointing me to this thread. I am really sorry you are going through all this! You know my experiences with the ectopic etc...which wasn't seen on my early scans...however, by 8 weeks i was having pain from the ectopic, and the fact you are not, seems a good sign to me.
    The drug is methotrexate...(sp?) it's a drug also given to treat rheumatoid arthritis and other things.
    I hope soon you will know what's going on. I think I too would be opting for the D&C.
    You really don't deserve all this stress on top of the loss you've already had. I know what it feels like to be back and forth with this stuff, and it is really stressful and upsetting. Sending you my best wishes and hoping things get better very soon

  11. #11

    Oct 2005
    A Nestle Free Zone... What about YOU?
    5,374

    Big hugs my love.... My first thought was is the pregnancy a molar pregnancy? Did they discuss that with you?
    Because your levels dropped and then rose again that is puzzling - and wouldn't be the usual course of events for an ectopic pregnancy. However with molar pregnancies this can happen... It can also happen when there is some pregnancy still attatched to the uterine wall - the placental tissue continues to develop and thus the rise in HCG...

    Sending you my love and support...

  12. #12
    Registered User

    Sep 2008
    Perth
    296

    Oh Julie - I just wanted to come in here also and offer you my support and let you know that you are in my thoughts and prayers. I am so very sorry that you are having to go through this and endure this amount of pain and heartache on top of everything else. I hope it all goes OK and that you can get back on track soon. Take care of yourself and be kind to yourself.

  13. #13
    Registered User

    Aug 2008
    Melbourne
    1,539

    Thanks everyone - your support means so much to me.

    Flowerchild - those are 2 likely scenarios - but if I understood everything (and I am not sure that I did as yesterday was a whirlwind), the D&C should be able to take care of it. I am really hoping that whatever it is, the D&C is the solution and the end to this saga.

  14. #14

    Oct 2005
    A Nestle Free Zone... What about YOU?
    5,374

    Yes, a D & C will remove this tissue from both scenarios - sometimes the treatment involved for a molar pregnancy is a little more involved post d&C. I think you are doing thre right thing in having the curettage. Until then try and imagine that uterus as clear and I send lots of positivity and love to you as you go through this...

  15. #15
    Registered User

    Sep 2006
    Beaudesert, QLD
    1,169

    hey

    just want to give you a big hug and kiss and to let you know that i will be thinking of you tomorrow

    take care sweetie

  16. #16
    Registered User

    Aug 2008
    Melbourne
    1,539

    Thank you...I was doing ok until I googled molar pregnancy - I really, really hope this is just left over tissue. I want to wake up after the surgery and have this all behind me.

  17. #17
    Registered User

    Mar 2008
    mid north coast, nsw
    1,644

    good luck Julie.. I hope you can soon put it behind you too

  18. #18
    Registered User

    May 2004
    Shepparton
    4,871

    I will be thinking of you tomorrow Julie

    xx

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