My little girl was born at 27weeks due to pre ecalmpsia and HELLP Syndrome and I think she has embraced being prem. She has gone onto excel and really just blow us away.
I show her pictures and she loves babies. I actually think like me she doesn't see the tubes and wires around the babies she just sees the beautiful babies as she has looked at the pictures since she was little. I tell her when we are looking at the pics where she was. I made a slide show with music behind the pics and she loves it. If she hears the songs she runs straight to the computer and yells Baaabbbbyyyyyy.
I think it really depends how you speak of her journey. For me I say that it was an unexpected early arrival filled with amazing and beautiful people. It changed my whole outlook on life,the area I work in and I have also joined groups to help those who suffer from PE and HELLPS, help to inform others about it and also with those who have premature babies for what ever the reason they were born. (hence why i don't get to post too much) I don't look at it as a horrible experience and so so so many people say those words like traumatic, horrible etc. I just say it was stressful but for me I met a few other families in there and we became friends. We shared our experiences and we became normal and it was just a few issues we needed to deal with. We never called them problems and due to us all sharing similar experiences we just understood each other. I suppose it made it easier when everyone else you talked to was going through the same thing so it didn't seem so horrible and traumatic. I think this was her journey and there is no point wishing i had of gone full term with her cause it was not going to change.
Airlie has done exceptional well and walked at 14months 11months corrected and has just really done so much more then we ever expected.
I kind of see it as my duty to tell people about the experience. I don't want anyone else to loose a baby because of PE/HELLPS or have the mother become so ill. I choose to use my own experience to educate others about premature babies PE, & HELLPS through our own experience.
When ever people ask about Airlie I tell them that she was prem and why as i think its important they understand. I then also tell them that her birth age 18months is when she was born and when she to have her immunizations and her corrected age which is her due date age is what her milestones are measured against. I tell them for the first months of a babies life they are trying to survive and become big enough to live outside the humidicrib and hospitals so they are not exposed to alot of things that full term healthy babies are exposed to. I just explain that they need those weeks they were early (in Airlie's case 12+2) to reach her milestones. Most people get it then and they actually say Thanks for explaining it to them.
Berry your lil girl sounds the same as Airlie. Mason our son was 5 at the time so he asked lots of questions and they are very close too. They are both compassionate kids which I think what we have been through has helped rather then hurt them. Airlie is not scared of anyone will go to any health professional too. I think again it comes down to how you react to things.
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