thread: So we begin our NICU journey....

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  1. #1
    Registered User

    Mar 2008
    North Northcote
    8,065

    sending all our love and strength babe

  2. #2
    Registered User

    Oct 2008
    1,572

    Thinking of you

  3. #3
    Registered User

    Oct 2008
    SA
    1,078

    Thank you all again for your support. I know its helping Heidi & it is certainly helping me.

    We have a 95% chance that she will undergo surgery tomorrow afternoon to investigate and rectify whatever is holding her bowel up. The follow up xrays after the gastric dye went in yesterday show that the dye is not moving very much and is essentially stuck in the one spot. Her tummy has blown up again too which isn't a great sign. They are doing one more xray at 8am in the morning and will make a decision about surgery then. There is a very slim chance that she is slowly working up enough pressure in her bowel to get things moving - if she does overnight then we'll possibly avoid surgery but its not looking likely based on today's results. If the surgery is necessary we won't really know what the outcome will be until they get in & have a look around. It could be a kink or knot, it could be a section of the bowel with adhesions or scar tissue from the infection, it could be that a section of her bowel has died. Each scenario presents a different course of action which could result in temporary or permanent changes for her. We just have to wait & see.

    Tomorrow is likely to be a very long hard day so we'll just cross all our fingers & toes and hope we get through it.

  4. #4
    Registered User

    May 2006
    Igglepiggle Land
    2,742

    You will all get through it hun.

    Massive hugs Infinity - you are so strong and Heidi is so lucky to have a mumma like you!

  5. #5
    BellyBelly Life Subscriber

    Jan 2006
    11,633


    All my love and strength for tomorrow

  6. #6
    Life Subscriber

    Jul 2006
    Brisbane
    6,683

    Oh hun, that must be very worrying I am thinking of you hun and wishing you good results tomorrow and lots of strength Keep fighting Heidi!

  7. #7
    Registered User

    Oct 2008
    Canberra
    155

    Oh Infinity, my heart goes out to you as your precious Heidi rides the bumpy NICU rollercoaster.

    May tomorrow bring Heidi the opportunity that enables her to move forward, growing stronger every day.

    Big hugs for tomorrow Hun, sending many prayers Heidi's way

  8. #8
    Registered User

    Mar 2008
    North Northcote
    8,065

    that today brings hope and strength for Heidi xx

  9. #9
    Registered User

    Oct 2007
    ★ nor here nor there ★
    4,134

    Thinking of you all today , praying for good news xxoo

  10. #10
    Registered User

    Jul 2010
    sydney
    2,187

    OOOOhhhh so good to hear!! she is such a lil inspiration!! a lil fighter just like her parents...
    poor lil DS too i hope use all get better soon sending you good health vibes x100!!

    keep kickin butt lil heidi!! show them who's boss!!!

    mwaaaaaa