Things have been so busy for us I haven't had a chance to jump on & post. Finally made myself stay at home tonight to have a bit of a rest.

DD is still going well. She was officially full-term in corrected age on Sunday (her day 101) so that was a day of very mixed feelings for me. Passing her 'should-have-been' EDD was always going to be tough. The main issue now is her growth. She has plateaued and they're still troubleshooting to try & pin-point why. It could be related to a lot of things most likely a lot of factors mixed in together. Some of it relates to the ileostomy (which kind of short circuits their digestive systems), partially its related to gut sensitivity and trauma from the infection & surgery and malabsorption issues. Also its related to her liver function which is getting much better now. Still trial & error with milks too which is getting eternally frustrating. Today they've asked me to cut out breastfeeds for 3 days to see if it makes any difference to the composition of her output. I dunno. I'm happy to try it but truly don't think one breastfeed a day would be contributing that much. So we'll see. The thing is that until they get her growing consistently there won't be any talk of home.

So still plodding along really - I had hoped to have her home for my birthday which is at the end of this month, but DP & I were talking tonight that I don't think we'll get that gift. Doesn't really matter though, she'll be home when she's ready.

Night all xo