thank you all for your messages. i am still in shock, combined with depression.

my DH is wonderful and we have been talking all day about it, and our list of questions for the cardiologist has now extended to two pages.... and we're still going. and my best friend has been a pillar of support too.

we of course need to go through the relevant tests over the next few weeks and gather as much information as possible in order to make the right decision. but who knows if it will be the right one? and how do i go on with 'normal' life in the meantime?

i'd love to hear any more stories from those out there.... success stories or not, i need to hear them all.

Mistyfying - does your little boy have any ongoing problems?? does he need medication or any future operations? and you mentioned his defect was considered severe - could the u/s scans with the experts tell you this, the severity?