oh and add to my more bad news - we had another appointment with a different cardio specialist last friday (as a 'second opinion') and he thought it could be one of 3 conditions - Truncus, Fallot's or pulmonary artresia (all are very similar and are hard to distinguish in the womb, you really need to wait until the baby comes out to tell for sure). but he said that the prognosis highly depends on the baby's pulmonary system - which he cannot see or distinguish at the moment - if there is somewhat of a good system, the baby has good outcomes (90-95% chance of having a normal life), but if there is not a good system then the outcome is very bad (most parents choose not to continue treatment as the baby just has to have operation after operation). we wont know if the baby has a good or bad system until he/she is born..... so i was operating on the idea that it should have a 90-95% chance of a good life - now we're back to a throw of the dice, it could go either way.

i think part of me is rethinking the decision to continue.... although my DH is fine with continuing... i'm just so very sick of all this bad news and uncertainty. i cant stop crying today.