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Thread: Recurrent Miscarriage and Fetal Death Information

  1. #37

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    I'm 5 weeks pg with another baby and very nervous after 5 years of mmc. I had almost given up completely and was resigning myself when I had a BFP. I know I am not out of the woods by a long shot but just want to say, don't give up, no matter how hard it is, change specialists if necessary because when I did, it was finally discovered I have Hashimotos disease and this may have caused the MMC and infertility.I had every test done to discover what may have caused the loss of 8 babies and kept asking and testing until I got some answers.


  2. #38

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    Jo, congratulations on your pregnancy!!!!!!
    You give good advice... Join us in the pregnancy thread if you feel you can...

  3. #39

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    Milla - ditto exactly as Flowerchild says! I take 1000mg of B12 also because I am a vegetarian. I am a little unsure about how much B6 to take. There is 50mg in my Blackmores Conceive Well Gold. Just lately I have been taking 25mg on top of this. But it can extend your luteal phase (which may or may not suit you). B6 also should not be taken for extended periods of time - something to do with nerve damage. I started Megafol at the end of last year. I do not know what my folate or homocysteine levels were in the past, but after MC no.3 they are normal. Hope this is a help

    AustraJoey
    - that is great news. CONGRATULATIONS. And you can go into this pregnancy knowing about the Hashimotos. It's different this time Wishing you a happy and healthy pregnancy. Can I ask you what is Hashimotos? I have done extensive MC testing and I do not think they looked for that one...

  4. #40

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    Thankyou so much for all this wonderful info Flowerchild and to the ladies posting, I have been engrossed in reading all you have to say, Im only half way through the posts and Im going to have to read over the info again and really study it to understand, Ive felt really stupid in leaving it to the Ob and GP after reading all this great info. You really should take matters into your own hands when it comes to things like this. Im going to.
    My last miscarriage was 3 weeks ago tomorrow and everyone is making me feel insane for contemplating another pregnancy, and I was starting to believe them. But Ive felt so lost and unhappy in thinking that that would be IT! After reading this information and the posts Im feeling less 'INSANE' and will definately read up on this and talk seriously with my GP on Monday.
    Anyone else have the disaproving comments and lectures about 'moving on with things'??? I find it hard, Im a sensitive person.
    Oh and I also get a ring like rash on the inside of my elbow and have have bloods confirming that I have arthritis! Theres definately something more to these miscarriages than just bad luck. My protein c resistance was only borderline normal too. So thats the suggestion for next time too, starting the clexane pre-conception. And anything else I can get my hands on too, to get my healthy baby in my arms.
    Thanks to all for posting, keep it up cos Im fascinated!

  5. #41

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    I will reply to you at length - it's insane in this house at the moment with four kids having end of year stuff - and somewhere in between there is my stuff!

    Listen to your heart - really really listen - it's never wrong. I am glad this thread has helped you...

    I will post tomorrow or Saturday...

  6. #42

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    Flowerchild- thanks for all the information! I have just read this thread and am finding it helpful.
    I am just about to get the results of blood tests for recurrent miscarriage, done through SIVF. I dont know what they are yet, but have been told they aren't all 'normal' so we see our FS (a new one, who agreed to do the tests) on friday to find out what's going on. Nervous but hopeful

  7. #43

    Default New to BellyBelly - 2 miscarriages in 6 months (from Perth)

    Hi all,

    I am posting here as I think my pregnancy history most relates to this thread. I live in Perth (WA) and am 32 yrs and DH 33. We have been TTC for the past 2 yrs but seriously TTC (i.e using OPK, basal thermometer, charting) since Aug 08. Luckily I fell pregnant that very month Aug 08 and thought this was not that difficult...little did I know! Anyways everything went well...I went for my first scan at 7 weeks and saw the sac, fetal pole and heartbeat DH and I were over the moon. Then went for my second scan at 11 weeks naively expecting everything to be perfectly normal ...that is when we found out my little bean had no heartbeat ...I was in a shock and couldn't believe this was happening to me ...I didn't know anything about miscarriages and never thought it could happen to me ...I found it emotionally very difficlut to cope with my daily life and everything came to a standstill for me...I became very depressed to the point that I didn't want to see or meet anyone...not even my family or close friends...it took me almost 4 months to get back to some normality and finally accept what had happened. I recently fell pregnant again (Mar 09) - this time very nervous but still hopeful that things will work out ..I also booked myself in with a fertlity specialist (Dr Mazucchelli) at Concept Fertility just to make sure that everything was in order (hormone levels etc) he asked for bloodworks to be done...he suggested for me to take progestorone suppositories as he found my levels dropping...as soon as I started on them my progestorone levels went up and maintained at a good level - I was still very nervous and worried ...I went for my first scan at 8 weeks and again no heartbeat - I can't believe this happened to me AGAIN...Dr Mazucchelli asked me to wait out for another week just in case the baby was in an awkward position and that's why we couldn't hear the heartbeat ...you all can imagine how that wait for a week went.!!!..I could hardly concentrate at work or on anything ...I went back and again after a week and still no heartbeat ...I am heartbroken and don't know what to do. The doc asked me to go back after I've natuarally miscarried ...he hardly spent 2 mins with me explaining what I will be going through ....I was crying at that point so the nurse that was with him suggested I should see a cousellor that are available to patients at Concept Fertility and he said that 'she is very busy and she won't have time to see me!' ...He didn't even ask if we wanted to book an appointment and come back ....I was too emotional to say anything then but left very dissapointed ...I am going to book and appointment after the easter break with the Dr and tell him how I felt and also to ask what the next steps are and also what he is going to do to help me and what tests is he going to do as this is my second m/c in 6 months. I feel very confused and don't know who I can talk to ...I feel like I have no one who understands what I am going through and have no one that I can discuss my concerns with. I don't know if my post makes any sense but at this moment in time I am very emotional and its helping just to let it all out ....has anyone gone through a smilar experience ...do you have any words of advise for me? Apologies for this long post but I had to let it out ...thank you all for listening x

  8. #44

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    I'm not sure if you are still around, but I have had a similar experience. Hubby and I started to TTC in 2004, and we had a miscarriage at 5 weeks the first month. After another year TTC and not falling pregnant, we went on clomid and in dec 2005, I fell pregnant and after a bleed at 6 weeks, carried by beautiful son to term. I didn;t think much of the first miscarriage. My doc said it's not uncommon, and many women have a miscarriage first time they are pregnant??
    In july 08, we started TTC #2, and in apr 09 I went back on clomid after no joy. I was overjoyed when I fell pregnant our first month on clomid, but again I miscarried at 5 weeks. I finally fell pregnant again this month, and I have just this week miscarried at 5 weeks again.
    My GP was great and said, although it's generally practice to refer to FS only after 3 consecutive misccarriages, if I wanted to be refered on he would happily do so (He's a great guy, my GP). Tomorrow I am going to FS, and I will be INSISTING on getting further blood work done.
    SOmething I've noticed as I have read this thread is that lots of us miscarry at around the same time each miscarriage. I'm sure that has something to do with RMC.
    Thanks for posting this thread, it's a support to those of us who feel we are isolated and shouldn't be 'airing our dirty laundry' (I was told that by someone) in public.
    Thanks
    Bec

  9. #45

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    Dec 2009
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    VICTORIA
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    Red face

    I was wondering if anyone knew of good fertility doctors or ones that deal with miscarriages i have had 2 and want to get some more answers?
    I live in Victoria so I would prefer to someone here.
    Thanks My Angels

  10. #46

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    My Angels,
    My fertility specialist is Dr Gronow at melbourne IVF. I've heard good things about any of the doctors from Melbourne IVF. There is also a high risk pregnancy/ recurrent miscarraige centre at the royal womens. Hope that helps,
    Bec

  11. #47

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    Just a question. Who does the recurrent m/c testing mentioned in the original post by Inanna or have I missed that information somewhere?

  12. #48

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    RhiChiChi - I can only tell you about my experience. My OB/GYN and FS did only a very limited amount of testing (anticardiolipin and lupus anticoagulant) and made it seem to me as if that was all there was to be done. I think this is very typical of these sorts of doctors since they typically are dealing with 'normal' pregnancies or women who have trouble getting pregnant - not with women who can get pregnant but have trouble staying pregnant.

    There are two types of doctors that may be helpful - a reproductive endocrinologist (RE) and a reproductive immunologist (RI). If you can get to an RI, they should be able to (and willing to) do all of the testing listed. RE's generally are more reluctant to do (or act upon) the immunological tests. I started with an RE since there was no RI local to me. He is a great doctor, but would only take the testing so far. I then bit the bullet and travelled to Chicago to see an RI who has been working on rcm for the last 20 years and worked with Dr. Alan Beer when he still had his practise in Chicago. I am currently waiting for the results. I was going to provide a full list of the testing here once I received the info from my RI. There really is a lot they can do now. I just wish the information was more readily available to those of us who need it!

  13. #49

    Default Recurrent Miscarriage and Fetal Death Information

    Just subscribing

  14. #50

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    Thanks Chris for that information. I think is Australia I can go to the Royal Womens Hospital for the testing, but will make sure I ask to see a RI then. I will be seeing my FS on Tuesday & will chat to him too about it & see if it is something they will do at Monash in Clayton. Thanks again

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