Hi Bec

Do you have contact with someone like a genetic counsellor at Mercy? Apart from our IM, our main point of contact was with our genetic counsellor. We had the option of going through the Maternal Fetal Medicine unit at RWH, but as we have PtSD relating to hospitals, we chose not to. We ended up using them anyway when we found out DS2 was sick.

For next time, we've had a pre-conception meeting with an OB who is prepared to do shared care with our IM. That means we can have half our meetings at home with our IM and half at a hospital with a private OB. If needed, we can always go back to a MFM unit.

The benefit of public is that you have access to tertiary level care for free. The downside us seeing a different person. I'd talk to either a genetic counsellor or consulting OB at Mercy about whether or not you can see one person.

The benefit of private is having a relationship with one person, the downside is the cost. I imagine you'll want to be reviewed by a neonatologist as well. We're planning on lining up a paediatrician in advance. In our case, we dont know the risk of reoccurance for either condition.

I'm happy to talk on the phone if you'd like. It may be easier to explain.