well we had a scan last thurs then again on tues and they said the brain isnt growing as fast as it should, theres space between the brain and the skull that shouldnt be there. So we're not sure if its definite brain damage or not. Waiting on getting an MRI appointment the specialist wants it for wed or thurs next wk but depends when i can get in. Have another scan next thurs in melb too.
Mummynelly- You're due 6 days before me! But I'm guessing you'll be having your little bunnies well before me being that there is two of them fighting for space in there. I hope everything goes ok with the MRI, this must be pretty frightening for you. Have you got lots of support to help you out at the moment?
I'm so sorry the news has not been the greatest so far, and I hope the MRI scans give you some greater clarity into what you are facing. Such a scary time so all I can really do is send you a hug and let you know you are in my thoughts
thanks everyone for ur support. I can honestly say it hasnt been the most enjoyable pregnancy as everytime things look up something else comes up. I dont live near family (my sister is half hr away but i hardly see her!) my mother and i dont talk, im close to my nan but shes 8hrs away and my dad is 14hrs away so im finding it hard at the moment. my husband has his dad and brother just around the corner. today especially im finding it hard and feel like i have no one to turn to for help. i hurt my back on the weekend and its still giving me hell so bending or anything like that even getting up hurts like hell and i have alot of housework to do. my husband helps out heaps but hes also been working alot so he can afford to have time off when need be.
Hi Mummy Nelly, I've been following your thread from the beginning. I'm sorry to hear that the MRI results were not what you (and we) were hoping for. I will be thinking of you and I hope your scan in two and a half weeks shows improvement.
thanks everyone unfortunately i don't think it is possible to improve. The MRI showed the brain hasn't grown and looks shrivelled. Her head is alot smaller than the bigger bub and her brain still too small for her head. The specialist said its quite severe damage and she has Cerebral Palsy. We're seeing a paediatition who is a specialist in brain damage and we will get more info on what to expect etc. If we didnt have the surgery to begin with then she wouldnt have survived this far yet having it has resulted in this. They cant say if it was b4, during or after surgery that she's been lacking in oxygen causing the damage. We still love her just as much and are lucky to have most ppl supportive of our decision not to terminate (i could never do that).
I have just read your thread MummyNelly and I am sooo sorry to hear your news. My heart is breaking for you.
Words cannot describe what you must be going through.
I hope you're doing ok hun. Such a big thing you are going through and I just wanted to say that I think you are amazing for the choices you have made. You are such a brave woman and I hope you have soooo much support around you to go on this journey with you.
thanks so much everyone, ur words mean alot. Traveller- they said expect to deliver from 30wks onwards but the specialist the other day said between week 26-32 is the critical time when i can go into labour. so i'm trying not to do much and stay close to home just in case! if i do go into labour i need to go straight to the doctor and get transfered to melbourne. It's a bit daunting the not knowing what's going to happen but i just try to concentrate on staying calm for the girls.
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and let you know you are in my thoughts
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