Thanks Tania for updating everyone I really appreciate it, I typed an email to our relatives and thought I would copy it into here to give you a full update seeing as I have been missing for a while.
Just when I thought we had turned a corner with changing formulas Lachie has again started refusing his feeds again. Grrr.....
So basically everyone the news is, is that I went to the paed today and he described Lachie as Scrawny. I guess he is getting longer but is not getting any fatter. He is probably right! He is gaining weight but ever so slow and when I explained that he refused nearly every feed except his last feed of the day and the feed during the night and that he still purks alot, he said right we have to find out what is going on. Lachie has been on the 5th percentile on his new charts (but under 3 in old charts), he has now dropped well below the 5th percentile line. The paed wasn't worried when he was holding his own but now he has dropped he knows that we now need sum explanation. Don't get me wrong I would be more concerned if he didn't gain weight at all but I am in tears most feeds when he won't feed. It is just so frustrating.
So the outcome of our appt is, is that we are both staying in hospital on Monday night, the nurses are going to feed him to try to see what is going on. They are going to do heaps of tests just as a process of elimination like liver/kidneys etc..... If they can't work it out, they are going to tube feed him and then we might be off to Brisbane to visit a feeding and sleeping clinic to try to sort things out. The paed said he is in care of other babies who won't feed and the simple answer of it all is that they just don't like milk!!!! What tha...... So he didn't explain what the answer was, and I am sure I will find out in time. I was so upset, left there crying, my poor baby. But I also feel a little relief, as the fights I have with him to feed, they are finally going to find out what is going on!
Lachie is a very active baby and doesn't stop moving and kicking, so I have always put down his slow growth to this fact. Today I fought with him to have his bottles so badly that I only managed to get him to have 60ml at 9am (prior feed was 3:30am) 12pm and 2:30pm. I always give him a big bottle (180ml) at bed time 9pm as this is the only time I know he will feed well (ie: semi subconscious) and also keep it all down too and a bigish bottle at his 4am feed too. I guess this then seems to carry him through the day hence the little top ups all the time. But I am afraid not to do this as if I hadn't of he might have been in hospital alot sooner. I do my darndest, and I am just so exhausted. It is now out of my hands, he is not sick, but we need to beef him up as if he does get sick he has no weight to loose. This terrifies me.
Lachie is now 5.29kgs at his last CHN appt at 18 weeks last week and 62cm long. I am so envious of all these chubba babies who do not refuse to feed.
When I was in Brissy the other week, he had 250ml in a 24 hour period, hence why my sister went to the chemist for me as I was just histerical to see what she could work out with the pharmasist for his feeds in changing to a different formula.
Who would have thought feeding a baby would be so hard! Wade and I still blame that horrible losec mixture that the chemist made up all that time ago, but they made it on a base of baking soda. Yuk. This is when all our problems started on my boob and the feeding issues. If only we could turn back time, but I guess we weren't to know they were doing it wrong wrong wrong. Grrrrr.......
I also told the paed that I am sure Lachie just isn't a big eater, but he convinced me that 250ml just isn't enough and he has to be having more.
So Monday it is, he is not too worried as we have been going along like this for ages now, so whats a few more days, maybe I will give my son a bit of a pep talk in the meantime. So if he has no health issues after all these tests and it is just that he doesn't like milk, then I have a baby with a serious attitude lol. Things can only improve from here, one can only hope!!!!!!! I am so tired, I am off too bed without a shower, ewww..... how sad is that!
Nite ladies, and sorry about the me post, I actually had sum positive stuff to post, but now i am too tired. Guess one thing that comes to mind is that, Lachie hates tummy time so much that yesterday I put him on his tummy and over he went onto his back. Clever little monkey. He has been half rolling from back to belly for sometime now but he knows where that will lead too, ohhhh no the belly. So I guess when he does this it is going to be a 360 degree roll and boy will we have sum chunder. Gosh I am sick of his clothes being wet! Ok nite now these eyes are open with tooth picks all because of this god dam dummy and popping it in all night long. What to do, what to do, I guess first things first as usual. Nite
Well Sheree after your text, Darcy must have known i was worried about another couple of babies and actually had a fair night. It wasn't good but it was better than it has been.
My sister always refused milk too and didn't gain much weight. They never thought it was because she didn't like it until she was about 2! But that's what it was. She still doesn't like it and she's 27 now.
Leanne, the incubation period for CP is about 7-10days. Does that fit?
Man I hope she doesn't have it.
I have a friend with a new bub coming this morning and then we're off to stay at Nanny and Poppy's for the night, for something different while Cameron's working.
Tania our Kmarts cr@ppy they never have good bubba stuff.
Sheree, your post brought tears to my eyes you poor thing. I will be thinking of you, Wade and Lachlan.
Katy was tube fed the first two and a half weeks of her life cause she did not want to suck. She had all the tests in the world which all came back clear, just did not want to suck. Now you can't stop her and she's one of those chubba bubbas.
I am praying that he is just fussy and does not like milk. I know it must be hard for you.
Me again ~ can't stay away!!! This place is very addictive.
Well Katy's spots seem to have gone so it might have just been heat rash, it was pretty hot here in Syd yesterday. There's just a few on her face but they may be pimples and on her chest has died down. She has a stuffed up nose and is coughing so maybe just a cold? Who knows.
I'll keep an eye on her though as my niece (age 4) who was here on Sunday and who could not stay away from Kaitlyn ~ well her spots appeared on Monday pm / Tues am. They say they are contagious up until two days before the spots appear so we might be lucky, but you never know. Grr.
Enough from me, I'll check in later
Have a good day girls.
Was that said tongue in cheek Vic?
After you said that about the shorts I went to target to try and find some suits with sleeves and legs cos sometimes it's still a bit cool but too hot for longs - they had none and no soft shorties either.....where else to go besides Target and Kmart??
Just a quick one before I dash out again. I've been so busy but I have managed to keep up with reading posts at least! I have a few pairs of Bonds shorts... they're from Big W and they're quite short and made from the same material as their te-shirts etc. Very cute and with matching accesories! HTH. Will pop on tomorrow for personals!
Sheree, it's a good idea to document it all. Even if her rights himself in many years you'll be able to show him what a torment he was and how much you gave him when he tries to put you in a nursing home! Only joking. Documenting it really is a good idea, because you do forget.
for you Sheree, Wade and lachie and GOOD LUCK!! I am really sorry that it has come to this for you guys. I really hope that all works out for you and that lachie gets gets nice and fat for you soon. Here's another hug from Briley and I
Well Briley, Brent and I are in Cairns this weekend. Mum decided to go up for some relaxation and to visit my cousin so i decided to follow! We have been down the night markets tonight for dinner, an ice-cream and a wander around on the esplanade. We are going to sugarworld tomorrow which is lots and lots of waterslides!! I can't wait to take Briley in the pool with me..Don't worry i'm not intending on taking her on the slides with me!!
The needles went ok yesterday. I still cried though. Even with Brent by my side. We also got Briley weighed and measured. Weight is 6.3kg. Height is 66cm(a growth of 5cm in 3 weeks i might add :eek: ). Head circumfrence of 41cm. But other than that she is growing well.
Kim - Glad to hear that things are looking up for you and Darcy. Briley had a good one last night too. She went down at about 9.00pm lastnight and slept through till 8.30am this morning. She even slept for 4 hours in the car on the way up here. We have just got home for the night markets and she is down for the count now so we'll see how tonight goes. Hope it continues on this streak for you.
Hi to everyone else...Hope all is well for you all.
Night i'm off to bed now we are in for a shocker tonight Ryan has been screaming for hours been on the boob for an hour sucking for a minute then resting for 10 ( i have plenty of milk i think - i have been getting the let down feeling ) but he also had a 160 ml bottle and has just passed out for daddy he ahas been jamming anything and everything into his mouth then screaming some more so these teeth better make an apperance soon other wise i may pass out from sheer exhaustion (sp) nite
Oh Shazz, I hear ya.... Last night Darcy wouldn't settle after her feed at 12.30 so I picked her up to nurse her as we weren't at home and I didn't want her to wake anyone. She takes one look at me and did the biggest projectile vomit I've seen for ages. She never spews, never. It was in my bra,down my belly and legs - gross!:eek: SO another night was ridiculous.
She's ok in the day and sleeps well, just not at night. I can't feel teeth, but she has to be the hottest kid I've felt. Tonight's not starting well either, but since this is night 9, I'm kinda getting used to it. Does anyone else have a wriggler? I mean a real wriggler who cannot slow down for one minute of the day. It's why she's so hard to get to sleep.
Cool trip Sara. I wish we lived closer to nice places.
Kim, my child is the ever ready man he almost needs a sedative to relax and I reackon this is part of the reason he doesn't feed well and is very hard to get to sleep like Darcy too! He has a terrible rash on his face atm, and the more he rubs is the worse it gets, it just look horrible, poor thing, it is just sooo itchy!!!!!!!!
This might sound a bit gross Sheree, but at 8pm on a Saturday what else can you get?
Have you tried putting a bit of saliva on the rash? It really does work to stop itching.
Hey you lot, how am i supposed to tell if the Dargon's teething? She always drools heaps (since she was born) and is always hot. She copped a bit of panadol tonight for good measure cos nothing else was working. I can't feel teeth.
Thanks Kim but I have some Qv ointment, it worked last time, doesn't seem to be working its charms this time, but am pasting it on once he is asleep so it isn't rubbed off!!!!
Does everyone else still have to nurse their babies too sleep, should he be more progressed then this by now, I think he has gone to sleep all of 3 times in his life by himself!!!
Kim ~ NO Fear Darcy is teething alright it is just the million dollar question as to when the little blighters will poop through ...fun isn't it these babes should have come with some sort of toubleshooting guide ...but noooo ... lol i'm hoping Ryan will get all his teeth at once give me a week of pure nightmareish behaviour and be done with it ...
Sheree~ i have started to nurse Ryan to sleep as he fights it every step of the way problem being is i now don't know how i will stop cause he just won't shut his eyes otherwise but he kills my back as he is so heavy
for you Sheree, Wade and lachie and GOOD LUCK!! I am really sorry that it has come to this for you guys. I really hope that all works out for you and that lachie gets gets nice and fat for you soon. Here's another hug from Briley and I 
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