Yep the ped said to stop solids and he will check her out on Monday. It's a worry for me as she's 6 months in 6 weeks time and I'll prob run into the same issues then when she needs to start foods. I think she needs higher meds but will see what the doc says.
I have an appt in may with a gastro ped that someone at ds' preschool wrangled for us as he only takes family of current patients. Never thought I'd need that appt but now we do.
Had a breakdown of sorts this morning. Too exhausted beyond repair. The dizzy spells are putting me at risk of falling or fainting. My body is starting to crack. My family have intervened and are practically forcing us to move in with my mum and dad until things are better. I too am worried about having a car crash or something like that as 2-3 hours a night broken is getting to be too much. Not excited at going to my mums. It's hard to accept how bad things are. But at least I have family that cares. DH can't sleep there as there isn't enough room for a double bed and port a cot. So he will stay until 12pm then go home. Then I'm alone with Jess until morning and my mum can watch her so I can sleep for a few hours.
Thanks for reading, just feeling so sad. I just want my girl to not be in pain xox



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Hopefully the gastro guy can figure out a way of helping her in the long term - you've had such a tough run. Accepting help from your mum may just give you that little bit of respite to keep going. 
Talk about cute...
mostly because their recommendations are alot harsher, and while they work faster I didnt want to be harsh with her. this whole process took Lilly about 9 weeks. So it's no quick fix, but you will make tiny gains every day. Let me know if I can help you with anything
That is all

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