thread: Aspergers/Autism/Sensory Integration Chatter #3

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  1. #1
    Lucy in the sky with diamonds.

    Jan 2005
    Funky Town, Vic
    7,070

    its always good to hear from you MM. Is young Murray seeing any specialists yet??

    Cheers for a bit of a break and well done for handling those meltdowns. I didn't think I'd ever be able to handle it somedays. I felt like a fricken champion for getting though the day...now sometimes I am meh about it.

  2. #2
    murraysmum Guest

    when he gets too much i take him to my mums and she takes over i think ild go narnas without my mum
    the daycare are wonderful as its a verry small daycare he dosent get overwellmed on his days there are onlly 7 kids
    atm they are setting up his early intervention and he needs to see his pead again soon for a review i moved house in may so the whole changing over of services has been slow verry slow still no OT or Speachy yet

  3. #3
    Lucy in the sky with diamonds.

    Jan 2005
    Funky Town, Vic
    7,070

    Oh that's great about daycare!

    Bugger about the OT's and stuff. My dream off running away to the country have taken a back seat, I'd never be able to access any services for DS. I'm lucky to get into the ones we have. Everything gets full really quickly.

  4. #4
    murraysmum Guest

    i was in esperance if u google it haha its a long 10 hr drive to perth for services or a 4 hr trip to kalgoolie
    so i moved back to harvey where my mum is its rural but only a 2 hr drive to perth and i quallify for alott more then i did way out in woop woop
    oh i love his daycare they meet all his needs perfectly and cause its a small town atleast most of the mums know me so i dont cope that oh that child gosh hes awful gospip
    atm im trying to change his diet any pointers atm all he eats is cereal lamb chops apples and pasta dosent varry much wonder how i could introduce some new foods without wearing most of it

  5. #5
    Lucy in the sky with diamonds.

    Jan 2005
    Funky Town, Vic
    7,070

    All great news!

    Got nothing on the food though. Have you tried Pentavite? I hide vegies where I can. DS has gotten really really fussy again. Driving me nuts.

  6. #6
    Registered User

    Oct 2006
    Sydney NSW
    4,837

    Riley just ate an apple/strawberry puree!! Not much in the scheme of things but huge for us!The OT has made him a star chart for trying new foods, its been an uphill battle but he's up to 4 new things in 3 weeks LOL
    Murray's mum- I hear you with the not many foods, Riley likes white or beige food (or mcnuggets LOL and he can tell if they aren't from McDs)

  7. #7
    murraysmum Guest

    oh i try to trick murray with chops and for some reason he knows if ive cheated and got them fromt eh supermarket and not the butcher its weird
    muz likes his food to be cutt up small devided on the plate and served in small portions at a time really frustrating cause i have to feed him first then eat after hes gone to bed cause i have no time to eat myself unless i wanna eat it cold
    i have to say he is really good with bubba he hasnt hurt her yet but keeps trying to feed her pick her up and everytime shes asleep he screams at her till she wakes up poor bubba

  8. #8
    Registered User

    Apr 2010
    1,118

    DS has gotten really really fussy again. Driving me nuts.
    DD#1 is having the reverse at the moment. She's rather proudly listing all the things she likes now that she used to hate. Chips, jeans and tomato sauce top the list. And we had some really long discussion about something really weird and technical last night WITHOUT ARGUING and I can't remember what it was now ...

    Ah that's right. Interstellar travel, the effect of no gravity on the human body, the speed of light, the speed of sound, lightning and thunder, and of course it always comes back to her favourite topic - the way you are most likely to die if you are hit by lightning. But no arguments!

    Pinch me!

  9. #9
    BellyBelly Member
    Add Yeddi on Facebook

    Aug 2010
    In a library somewhere...
    788

    DD was diagnosed with her PPD last year. Over that time we have incrementally tried new things/therapies. Osteopath was one, which made a big difference because he put her on a GABA supplement. It not only changed some of her behaviour, but it also stopped her from having fits whenever she went over 37 degrees. Before that, if I thought she was going to have a temp I'd have to stalk her. Since starting she's had temps up to 39 degrees without fitting and I've seen the difference in her eyes and the smell of her breath because they were normally the give away of an impending fit.

    Then we started (about six months ago) doing Sensory Integration Therapy and Extra Lesson through our local psychologist Marriane Judd. The differences were obvious, but mainly only to us in an everyday context. After the initial period we are now doing the at home program as part of our homeschooling Integrated Listening Systems Australia. Sound Learning Systems. Auditory, Listening Program, Sound Therapy, Australia which has been super beneficial. I can really tell the days when we have done our music time and when we haven't. (We do ENKI for homeschooling btw, if anyone is interested. It's expensive for a homeschool curriculum - about $800 a year to ship from America - but it is awesome and well worth it.

    But the biggest change was with the diet, which was the GAPS (Gut and Psychology Syndrome) diet created by Dr N. Cambell-McBride, who has an autistic son herself. Very interesting reading, and makes lots of sense. I since come to truly believe that yeast-overgrowth is evil, particularly for my child. Balancing her good gut flora and removing yeast and yeast feeding foods from her diet has made the world of difference. Everyone comments on it. Those who don't know her would never guess she has any issues anymore. In fact, her public psychologist and therapy team have warned me that when they do the review in 6 months time, they're most probably going to have to take her off the spectrum. And I agree. She doesn't really belong there anymore. She still has some issues (like chewing metal and licking strange things), but it's worlds apart from where we were.

    I encourage you all to look into some of these resources because they've made such a big difference in our lives, and having tools always helps.
    Last edited by MistyFying; August 16th, 2010 at 07:18 PM. : removing links - PM Yeddi if you need them