christy sooooooo glad that you have finally someone in your corner giving you the help you need - and how brilliant that even in such a short space of time, it has had results.
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christy sooooooo glad that you have finally someone in your corner giving you the help you need - and how brilliant that even in such a short space of time, it has had results.
BellyBelly Member
Aren't OT's magnificant! They really 'get' our kids. The charts sound great..
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We saw the paed last week who "surprise surprise" told us it was all our faults & it was just behavioural after we were there for 5 minutes. *groan*
He said she was unable to regulate her emotions as well as sensory integration disorder... ummmm yeah.... and???? So he wanted us to start a thing called "Watch,Wait and Wonder" in order to provide Matilda with a way to express herself without our interfering but our presence. We have tried it and... nothing. No change... okay its only a week but seriously?? It means both DH & I have 3 turns a week of spending 30 minutes alone with Matilda. We sit on the floor with her, with some toys and nothing else. We don't initiate anything, we sit, if she communicates with us we are allowed to respond but we aren't to stifle her. So the first time I did it, she screamed because she didn't want to be in that room, so we moved and an hour later... maybe we had 5 minutes of doing it the right way. Than she screamed for the rest of the day. The next time I tried it, she went okay, but then screamed the rest of the day. Whenever DH has tried to do it, she has refused and screamed for hours.
I told the paed that I would continue to do it, but I felt like it was something else someone wanted us to do, but it just left DH & I open to more criticism and I didn't like that.
He has referred ME to councelling because I am a "distraught" mother.... I'm sorry, I don't swear but WTF??? OF course I'm frigging distraught!!!! WT???? Wouldn't you be in my situation? On the best day since our move, Matilda has screamed for a minimum of 2-3 hours. ??? Distraught????
*breath in, breath out*
BellyBelly Member
Oh Christy! Big hugs to you! go and find a different paed or if you feel the need perserver and detail everything that is going on so when you walk in next time you are armed with ammo! Will your OT write you a letter/report that you can take in? Oh another thing my SIL did was video tape her DS and took that to the paeds office.
As for the couselling. We were sent to couselling too! It was such a huge waste of time but did help DH and get on the same page on some issues in regards to behaviour. Is amtilda seeing the psychologist too?
**** - what a complete ********!!!!! *maz' blood boiling over now* Its one thing for these 'professionals' to give us advice on how to cope and do things with our kids but lets see how they would react having to live the reality...having them 24/7. Honey...my advice...stop friggen doing it. If its doing your head in stop it. You honestly wont get anywere and whats the point of making the whole house upset when its obviously not working! Maybe the arsehoole should have given you a referal to an Occupational therapist the ****!!! Oh I am SO angry!! Let me at the *****!!!!
We're not having a good time in this house either!!! Last day of school yesterday and Wilhelm just doesnt get itToday is thursday mum...its not my day off. And Vy has started being a turd which sets Wilhelm off! She's doing the screaming in public thing...and saying no, kicking me...I could have killed her last night at mass. And Mateauz got a vrius the other week along with conjuntivist which has made him go backwards so it looks like we might have to get a special leg cast to stop his leg turning out
It just never rains softly these days
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Nope... it fricken hails.It just never rains softly these days
Poor Wilhelm... its so hard on these super kids. We've had a huge December calender up on the fridge (thanks OT!) and have been counting down the days & talking about Daddy taking holidays and Mummy working more... and Christmas day. Matilda's doing heaps better with that. I started the daily run downs too. I don't have the A3 poster board up yet, but what I do is in the morning when she wakes up I say "okay hun, breakfast first, than you are going to get dressed and brush your hair & your teeth" Than when we are up to brushing hair, I prompt her as to the next thing. Thats helping. She pushes boundaries, but is less hysterical all the time. I can see her anxiety levels dropping.
I think the anixety levels are what get to me. Wilhelm wet the bed 2 nights ago and wet himself straight away at school. I got so peeved cause the stupid receptionist put their clothes on him (which set him of more) when I have a bag there with his name on it and his own clothes in it.
its fantastic that your finding things that are working babe. We dont you boards but for chirstmas we got an advent calender (my mum gets them for the kids) and that helps.....Ive also told him to empty his school bag out which he's happy doing..
I am so having one of those days today.....I could just sit in the corner and cry
BellyBelly Member
Maz - holidays suck! We are on week two and I'm over it! Yesterday he won't even go to OT everything is so out of wack. I hope Vy and Mateauz are back to their selves soon so you can have a bit more peace and that Wilhelm settles for you! DS seems a lot calmer since we got a letter with his new teacher etc, has put his mind at ease a little but the last week of school and first week of hols were the worst! Wish I could give you a hand!
Christy - I'm pleased the day planner is working, which reminds me I have to get ours fixed up, that might help me from tearing my hair out
Also we were told by his teachers that he has been getting on really week with this kid at school and I saw them at a birthday party the other day (BTW have I mentioned how much I hate B'day parties - that's a whole other story) anyway they did get along well, talking about pokemon and acting it out! woohoo I thought and grabbed this kids number. Anyway organised to have a play date - what a disaster. Xander ended up miserable because this child wouldn't stick to his script and then there was the competitiveness - it was almost as if this child could perceive his weakness and just played on it. IYKWIM. I don't know why I bother it always ends badly :-(
Also DS is sick but it is so hard to know what's wrong as he can't pinpoint where the problem is. He won't eat and says his tongue is sore - his throat looks fine? And now he has a sore leg? From his hip to his ankle? It doesn't seem to be muscular as if I poke him he doesn't flinche - just hurts to move and walk on??? I don't know what to do?
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