thread: Bethlem Myopathy / Ullrich Muscular Dystrophy

Hybrid View

Previous Post Previous Post   Next Post Next Post
  1. #1
    Registered User

    Nov 2004
    Chasing Daylight...
    2,034

    Hi Cath, I agree with the others, your princess has a gorgeous smile! I don't have any advice to offer, but I'm pleased you can use this area of BellyBelly to seek out support and get things off your chest where you need to

  2. #2
    peggy Guest

    hey cath,
    what a little cutie you have!
    i dont know from personal experience about what you must have gone (and going) through, I do know that the people dealt the hardest hands are those who can deal with the situation they are dealt.
    A very close friend of mine has muscular dystrophy, he is now 42 years old, and though confined to a wheelchair he has the most bubbly loving sense of humor of almost anyone i know!
    I do know that in his family of 4 chidren his mother had, 3 were diagnosed with MD which is pretty high odds.
    I can also say that his sister (the one not diagnosed with MD) has 2 healthy 'normal' children.
    If you would like to know anymore about my friend PM me your email and i might be able to get him to email you as he is at hs computer often, im sure he'd love to have a chat.
    I hope this is of some help!
    kindest regards,

    peg