hey cath,
what a little cutie you have!
i dont know from personal experience about what you must have gone (and going) through, I do know that the people dealt the hardest hands are those who can deal with the situation they are dealt.
A very close friend of mine has muscular dystrophy, he is now 42 years old, and though confined to a wheelchair he has the most bubbly loving sense of humor of almost anyone i know!
I do know that in his family of 4 chidren his mother had, 3 were diagnosed with MD which is pretty high odds.
I can also say that his sister (the one not diagnosed with MD) has 2 healthy 'normal' children.
If you would like to know anymore about my friend PM me your email and i might be able to get him to email you as he is at hs computer often, im sure he'd love to have a chat.
I hope this is of some help!
kindest regards,

peg