Hi Cath, good advice from Kate about the genetic support network.

I've treated people with MD, and I have to say I have found them to be some of the most interesting and mature people for their age regardless of their physical abilities. I can understand how hard it is for you to see other kids doing stuff, you would have envisioned your daughter doing those normal everyday things and would never have imagined she might not do them. Because her muscles don't work so well doesn't mean she can't be a high achiever or a success though. I sat on a steering committee for a project around disability with a girl who had a major brain injury at 16 after being beaten nearly to death by her boyfriend. Physically she can't do lots of things others of her age can - she uses an electric wheelchair, and she uses a device that she types into to speak for her. But she has been a great addition to the committee, and she has achieved so many things - recently she addressed the United Nations in New York about womens rights, how good is that for someone who is all of 19 or so???? She has personality galore and I sometimes forget she has a disability, she stands out from the crowd for her abilities so much.

Cath, I'm sure your daughter will stand out from the crowd too, and be an amazing person. Good luck to you all in this journey.