More info about me
Cath,
I forgot to write that... I obtained a licence, master and PhD in Biology and my myopathy did not block me in my study. I obtained them in France and did not hesitate to leave for the US. So, be sure that Chloe's life can be almost normal ! Just maybe more mature and motivated than others
Take care
Hi Alex
Thank-you so much for your reply!!
Sorry I haven't replied sooner but I haven't visited this section in a while (gave up a little)
It is so good to make contact with someone who knows something about this - let alone heard of it.
I would love to make contact with you to find out more - especially that research on drugs!
I have so many questions. My main question to all doctors is - will she walk? - no-one likes to answer. Our neurologist has just said "we have people that walk with this".
As for Chloe's mental health - i have no questions there! she is so clever - sometimes too clever!
Anyway have to run - Chloe needs a nappy change!!Hope to chat soon
Cath
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