hi all i hope everyone is going ok.
catlins mum good luck with everything i hope catlins going well.
Wow joels girl you sound like youve had some tough timesthe wait and see line has lost all meaning it gets really frustrating. where in newy are you- sams 2 days younger then your LO!! makes the world even smller lol
i know sams condition isnt as severe as some of yours, but i can relate- strangers commenting on how beautiful your bub is only to give a weird kinda look- a mix of pity and relief its not them-when they ask why his eyes are shaking and he wont look directly at them(nystagmus) - sam does seem to be getting a little better though, as to what he can see and how far we have to wait until he can talk and tell us!!
We recieved the results for the MRI and they cant link the eye problems to the cyst which is fantastic and the cyst hasnt gotten any bigger
still doing the patching sam hates it!!
have a follow up with the opthamologist in june and neorologist in oct.
wish everyone good luck and good nite