Hi ladies,

Sorry to be meeting you all under such circumstances.

My son was diagonsed with bilateral congential glaucoma at the age of four months. He has had surgery on both eyes in the past two months hence my relief and excitement when I found this thread.

What we are being told so far is that it is a life long condition that will require regular monitoring by his op in sydney. His sight has already been damaged but to what extent we will not know till his reaches age 4 or 5 !! I think that's the hardest thing to deal with - the wait to see how good or bad things are going to be. At the moment he can see for 3 - 4 metres ( he is 7.5 months) and will get glasses within the next 6 months. After the test the op stated that his sight may improve as his eye develops but it may also get worse.

He looks so perfect and everyone comments on what big beautiful eyes he has - yet that is due to the glaucoma and what is causing all the drama so it's hard to take the comments as a compliment IYKWIM.

Looking to chatting and venting with you ladies.

Hey Sams Mum we are also in Newcastle - small world hey !