Hi Ladies,


My name is Nicole and I just found this site and love this blog. I have a 11 week old baby girl who was born on 19th March 2009 with Pierre Robin Sequence (cleft palate and small jaw). We spent almost 2 months at RCH but are now home and happy. Her only issue now is feeding. She has a NG tube and has been struggling with the Haberman. She has about 50ml once a day if lucky(total feed is 150mlx5). Yesterday we had a check-up at RCH and speech dept gave me the chu chu cross cut to try. She likes the teat better but is not getting a lot of milk out of it. I was thinking of getting a squeeze bottle or the trying the pigeon teat. There is also a chu chu easy feed teat which I may try.

I really want the NG tube out and would love any advise or to speak with other mums of PRS

Regards,
Nicole