Hi Nicole (welcome) and HI to all you other lovely ladies
It has been a while since I was on here so just htought I woudl see what you have all been up to. We have just been back to Brissy for Alex's second set of gromits. We have another hearing test scheduled in a few weeks which will hopefully now give a much better result than the last (with the old gromits). How are all your brave boys and girls going??
Nicole, I do not have any experience with PRS - Alex was born with a complete unilateral cleft lip and palate (he actually had next to no soft palate). We also had breathing issues at first but they thankfully sorted themselves out quickly. We did use the squeeze bottles for a while. Alex was a habermann baby until after his first op and then we had to use a hard spout. As he had no palate (and now no plate) he couldn't suck so we had to combine this with the squeeze bottle. It took probably a good week to get him used to just swallowing the amount squeezed in. It took practice for both of us (and was quite messy and very frustrating at times - I think I woudl waste twice as much as he took at first) but we got there in the end. I guess all I can say is stick with it chick - you're doing a great job and it is totally normal to feel the way you are feeling sometimes- I think it would be fair to say we have probably all had our moments. Hope it helps a bit to have these sorts of forums available to chat.




Reply With Quote
Bookmarks