Hi ya guys

SELFISH POST !!!!!!!

Wilhelms appointments and meeting went well...we are getting funding so we can buy one of those egg type chairs from IKEA that are $150. His school uses them for the autistic kids so they can have time out without leaving the room. We so need something like this for him at home cause he lsot his room when mateauz was born and now has no 'cave' to retreat to. Will be picking it up tomorrow when we're in Melbourne.
We have to see the Nurologist and Hemotologist. VERY scared but hopefully I might be able to sleep from tomorrow onwards. Mateauz is in his cot in his room now and I wake everyhour and check on him. Im so scared of him having more seizures and I am so scared of finding him dead in the mornings. I never worried about cot death and all with the others but I suppose after everything my little man has gone through I just cant help it.
Thank god for my sewing ATM..its the only thing keeping me sain

ok better go and shower while he's still asleep

hop everyone is well and that the heat has cooled down