Joel's Girl
Hi I was doing a search on the internet and came across this forum. My daughter is nearly 5months old and was diagnosed with CG at birth. I haven't spoken to anyone in Aostralia who has experienced this so was interested in hearing about your experiences. How is your son coming along? My daughter has had a goneotomy in her right and now trabecolotomies in both. Her Dr is Dr Tan at the Childrens Hospital in Sydney.
Lucia
Firstly so sorry I havn't seen this post earlier.

Hamish was first diagnosed with bilateral congenital glaucoma at 4 months and had surgery at 4months and again at six months, had five different eyedrops for approx 3 months afterwards but since then his pressures have maintained themselves.

We see Dr John Grigg at his Gordon Eye Surgery but all surgeries are done at Westmead Children's Hospital. We see Dr Grigg every 12 weeks, hamish's eye pressure is tested at each visit and on every second visit they put drops in his eyes to allow them to dilate enough to do a field test of sorts to gauge the eyes developement. From what we've been told his eyes are developing at the normal rate. Originally they said he would require glasses at about 1 years old to correct his short sightedness but from the field tests they don't believe that to be necessary. Until he is old enough to communicate the results we won't truly know what / how far / how clear he can see.

We are seeing great improvements in him all the time. The glare / sunlight can still be a problem but not near as much as six months ago. We are crossing our fingers that we are one of the lucky ones that had corrective surgery early enough to prevent any longterm damage to the vision - this being said, Im more than aware that at ANY time during his life the pressure can rise again and cause damage so I know we are not out of the woods so to speak.

Happy to talk to you further and willing to provide you my email address i you wish to support each other through this.

All the best with your little one......

Cindy