Dyspareunia (Painful Intercourse)

[elephant]

I hope that you find some answers and some peace of mind hopefully we can be of some assistance with advice and by sharing our own stories!

I know how hard it is to go through tough times and not knowing when things will get better one day i'm sure it will for both of us!

I am currently 25 and was diagnosed with PCOS at 16 then I was diagnosed with ENDO at 22 I think? I had a lap then to remove my endo then another last may sadly I have not found a lot of relief as my Endo is now effecting my nerves from where my endo was removed resulting in the same pain as my endo and no amount of laps will make it go away. I had a Mirena inserted a couple of weeks ago to help deal with some of my pain but I think its too early to tell how well it will work. Im also waiting for my appt in June for the pain clinic to get some more help fingers crossed!!!

I too have a lot of pain which is often better after a BM this is because my endo was on my bowel as well as my uterus. I also have very painful intercourse and general pain pretty much daily.

It seems like your doctor is really keen to inverstigate which is great because from what I hear on this message board a lot of doctors dismiss womens pain and concern. I happened to get lucky and have an awsome Dr!

If you need any advice on docors etc please don't be afraid to ask I will be of help if I can!

Any more questions please ask remember nothing is too silly! I wish you all the luck in finding out what is going on with your condition.

x

[dusty]

hi ladies
a friend of mine suffered this really badly and it was really affecting her relationship with her DH. she eventually did an exploratory lap etc and everything was clear but they did find that her hymen had never been broken. that was one of the problems solved but the other one was psychological as she always associated intercourse with pain and hence was adverse to it and tensed up every time. she still had problems and needs to see a psychologist which has been very helpful in overcoming this and other anxiety problems.

i HTH
xx

[Eryn]

hi Celine.

No, i haven't been tested for PCOS...
I'm not really sure what it entails?

The pain that you've described sounds similar to one of the many types of pains that i have in relation to my endo. I also have chest pains, shortness of breath and arrhythmia. So it's possible that this is a symptom of endo, though i don't think it's recorded as such?

Update on my health: The latest contraceptive pill i've been on has controlled the bleeding. The pain has been less, though, still there. I'm still vomiting 5 or so times a day and my throat is hating it. Had an endoscopy and colonoscopy last week and they took some biopsies. Also had some more bloods taken. Turns out that i'm also b12 deficient. Had my first injection today. I'd recommend any of you that get blood tests regularly to request a b12 test, as apparently, many of the symptoms i have that were assumed to be related to my endo could also be related to the b12 problem. (Apart from the bleeding, lactating and painful sex of course.) Unfortunately, i've had to drop two of my classes at uni. I'm really dissapointed, but i just haven't been able to get there enough. I've already missed 50% of class and it's only week 4. Feeling pretty down about the whole situation.

HAPPY ENDOMETRIOSIS AWARENESS MONTH!!

If anyone has msn and would like to add me, please ask for my email. I'm more than happy to chat, compare notes, listen, anything. It's nice to have someone to talk to that understands. I've recently met a woman that shares the majority of my symptoms and she's been a wonderful friend. So, if any of you need to talk, let me know because i know how much it helps to be understood.

<3

[elephant]

Glad to hear you seem to be getting somewhere with a diagnosis/treatment! I am really sorry to hear that you are still having pain which is effecting your ability to attend uni its so difficult sometimes to get to work etc and push through the pain! I understand how you feel! I work in a physically demanding job and somedays I can barely face the thought of going to work but I have to push through the pain.
I got to the gym and did a combat class which I havent done in ages because of my pain, it was nice it actually allowed me to focus on something other than my endo!

Hope to hear more success from you soon, I dont have msn but maybe I could get your e-mail address anyway and we can just e-mail? I could use someone to talk to that understands me!

x

[Eryn]

Definitely!
My email is skunk . girl at hotmail. com (without the spaces).
It sucks when you can't get to work / uni.
I'm glad you got to attend your defense class though.
That's great.
I actually just got home from town, i managed a night out! I'm feeling really happy for myself, because i generally never go out because of pain / sad.
So here's to us getting to do things we haven't in a long while!
Hope to hear from you soon.
<3

[Hollybolly]

Hi Girls

All of your stories sound oh so familiar to me too - I won't type out my story as it has become a novel over the years - but you can check out my TTC #1journal of you're bored enough!!!

Another thing I can recommend which hasn't been mentioned yet is alternative therapies - in particular acupuncture - it has been a miracle worker for me over the years.

It will definately help with the intercourse pain, the breakthrough bleeding - and lots of other problems associated with your meds... definately worth giving it a go

HTH xxx

[EMMAz]

i have these symptoms and my dr cant help or find anything... Bloated abdo, constipation, feeling of fullness very quickly, nausea, pain during intercourse, feeling tired very quickly, pain doing lower abdo and ovary area many times a day stabbing like pain. i have had a laparoscopy and nothing was found was believed to be that i had endometriosis but nothing, i also had a mirena put in but does not help with the pain like it was planned to be. at 20years old it awful but it would be at any age! it hard to have a sexual relationship with my fiance when its painful during intercourse and feel like vomiting after orgasm... very embarrassing but true!! is there anyone out there with similar symptoms??? please help. EMMAz

[Footsteps]

hi ladies,
iv also got endo but iv got severe adhesions from a op years ago on my bowel which has spread, my endo was discovered on scans and they wont do a lap because of the scarred tissue is so bad. im on morphine for the pain anyway. atm iv been bleeding for 4 weeks and im on the pill yasmin..off the pill i bleed for 30-40 days. i also am in agony during sex but iam very lucky my partner is amazingly supportive. im only 20...iv suffer since i was 14/15 and this is horrendous iv also got pcos. so far iv seen 12 surgeons, 3 gynaes and 3 pain docs non of which can help me its horrendous theyv tried so many different pills it a joke..all of which i still bleed on. iv asked about the implant and they dont think it will help. at my last gynae appointment they where talking about a hystorectomy..im 20 ffs!!!
sorry for the long rant iv just got nobody to talk to..also iv got damaged tubes due to the adhesions and they cant go in and clear them iv got to go through ivf to concieve anyway iv already been told that.
thanks for the chance to get my feelings out.
to all and a big .
thank god for bb!!!
take care
rach xxxx